Lovely to hear from you, and it is very good news you have reached the end of chemotherapy. It has been a very long road for you through it, now I hope the tablet meds will be easier to tolerate. It must be very nice to be able to do some 'normal' things without having to keep one eye on the calendar waiting for the next round of chemo.
I am so glad you finally managed to get away for a little while for a short break in the Med. I am sure it was beautiful, relaxing and warm. Lovely that you all, including Chili got to enjoy it.
I love the latest pebbles, they look fabulous, and are so pretty. Yes you are right, things do seem to slow down during the summer holiday season. I have spent most of it in the garden, my painting is sitting on the dining table, waiting patiently! In the last week since we returned from Cornwall I have picked up my cross stitch to do in the early mornings while chatting with Hannah over breakfast.
Today the weather has turned, and as you say 'autumnal' weather arriving. I know it means C can get underway, but I am not ready in my head to make the adjustment yet! haha! Not sure I will be baking much, I have several cakes still stored from last year. I will have to unwrap them and see how they are.
This afternoon, I have spent a couple of hours sorting through family tree stuff, it has been littering the table for far too long. But now I am in a quandary about how to file it all, so many tangents. I recently made a huge breakthrough in Mark's family tree, which was very exciting for me, although he isn't bothered! lol!
I hope you have a good evening, chat soon,
I’m not sure if this forum is still up & running ... I suppose the summer period isn’t as “ creative” since we’re outside more. That’s been true for me so I’ve been less “ productive “ than usual.
My chemotherapy sessions have finally finished after a long hard year. I’m now starting a 2 year course of chemo pills, hopefully no more vile side effects...
So, I’ve managed to paint a few pebbles during the summer & just done a little series of cats for various cat-loving friends. I was running out of good flat stones until last weekend when we managed to go to the Mediterranean coast so I collected about 50 & my poor husband Peter kindly carried them to the car.
Im trying not to get disheartened about losing light & entering autumn- which I love when the weather’s fine. We’re lucky in Toulouse as it often can still be quite warm for a while. And then of course we have the build up to Christmas which I love & which makes me feel creative. We’ve officially entered autumn so allowed to use the C word now ! 🎄
Take care, Ali xx
Good afternoon Diane 😊I hope you're well and keeping safe!
I would like to write to you with the latest, but most of all I really need an advice.
In my last message I wrote to you I started with the 50 EvorelConti patches. Which didn't work. So I had another phone consultation but this time with a different gynaecologist (which I used to see until October 2019 at a Sexual Health Clinic. But after a couple of months I was told they couldn't see me anymore because my problems were related to menopause and not to sexual health problems).
She was a little bit more helpful than the other doctor. I told her I was feeling very unwell. Because apart from the menopause symptoms, the main problem was (and still is) a very very weak bladder and a big constant pain, like between the ovaries and all around there.
She told me to do a urin test for any infection (which was negative) and she changed medication.
She put me on: 1 Estrogen 50 + 1 Evorel Conti 50 (both together twice a week) +
1 Estradiol 10 Microgram Pessaries (1 a day)
It's been six weeks today since I started the new medication and this morning I had a phone consultation with the gynaecologist.
The situation is: I have no major menopause symptoms. But the bleding, pelvic pain and the bladder are much worse.
The bleeding has never stopped. It had varied throughout the six weeks. From proper period, to little less.
From fresh blood to brown. Clots. Of course together with unbareable pain. Since I suffer from Adenomyosis.
The pelvic pain is constant. Sometimes better, other worse. I can't sleep on the side, I can't sit on the floor or assume positions like sitting with my knees towards my chest. Of course a sexlife is impossible.
So the doctor said that yes, there is the adenomyosis and probably a uterus prolapse pushing down there causing even more pain and more problems with the bladder. (which are all things I knew was happening)
I asked her about hysterectomy and that I've been reading about it and the reasons to have it. She said there would be the need of an examination but with the Covid situation they can't do face to face appointments. so she prescribed me some other tablets, can't actually remember what, to stop the bleeding. And to talk again in 6/8 months.
She could hear I was very upset about not being able to be seen and examined and to finally have more concrete answers.
I think it's crazy. How poorly has to feel someone and for how long has to go on for before you can get the proper help?
Throughout all this I was of course in constant contact with my mum who lives in Italy. And she kept telling me all the time to try and go over there and sort it out there.
Yesterday she told me to get on the first plane and go there. Before UK goes in lockdown again. She would have already found three good doctors we could go to. Privately.
So now I need to decide and I don't know what to do.
The options are to go to Italy to try and find a good doctor that would really help me, examine me and give me the answers I need. Of course private, which I can't afford so my parents would have to pay for it.
Because of course in Italy the Covid situation is much better and doctors do see you.
Or stay here hoping to find another way I can see a doctor who can help me?
My priority is to have my life back. As soon as possible. And of course I would go home for it, but it's not fair. I should be able to get the help I need overhere. It is not what a woman in menopause should face.
Thank you Diane for reading this and I am sorry it's a lot. But I truly don't know what to do and I am trying to make a decision. And I hope having another precious advice like yours will help.
Hello dear friends
Lovely to see all the fabulous pictures you’ve posted.
I’m happy to say that I feel much better & appetite is back ! My myélogramme results show that all is good- phew ! They’ve decided I don’t need the last 2 chemos of the protocol & I’m starting the 2 year chemo pill therapy on Monday. A specialised nurse checks in with me each week & I call her if I need advice. So now just 1 blood test per week which will make it easier to go away for long weekends . 😊 The bad news is I’ll have to take steroids for 5 days each month so expect to see hamster face climbing the walls at 4 am ! 🐹 Could be worse ...
Well it’s the first day of autumn & here in Toulouse we’re seeing temperatures drop & rain forecast which is badly needed. Last weekend we went to the Med ( near Collioure) & i finally got to see the sea ! We took Chili who absolutely relished it. I really love the Mediterranean landscapes. We avoided people & picnicked on the beach, finding little coves where we could take the dog & swim. It was a lovely break & did us a lot of good.
Hope you had a good time in Scotland Michelle. It’s been ages since I went there.
Great cat photos Rob !! And the viaduct - never beeen there but spent a lot of time on the Pickering- Goathland line especially when my children were little. Daniel was mad on trains ( as is his grandfather) .
Hope Hannah’s settling into Uni Lou. My Hannah has just found a job in HR after finishing her MA. I’m quite relieved & proud of her as she was chosen from 16 candidates.
I’m definitely feeling a bit more « free » now the heavy Graal protocol has ended. It was a very tough year with>80 chemos . I’m ready to go places & see family but of course I can’t with Covid. It’s really frustrating isn’t it ?
Time for my nap 😴 Stay safe everyone, Ali xxx
Wonderful prickly pear everywhere at the coast.
Grapefruit tree in our garden with tiny flower .
The lockdown has brought my hubby and I closer we did the cooking together and cleaning it was good
Hi I also have low moods I start to speak in loud tones at my son and hubby I cannot calm myself
Oh dear, you usually get fantastic results. I hope you have better luck with the leeks, spring onions and broccoli.
It is still sunny and very warm today and everybody is strolling around in Summer gear and sitting out in the cafés and bars. We have been out all day making the most of it whilst it lasts as we are not going to risk going abroad looking for the winter Sun this year. Sadly, we will not be able to visit family in the UK either so we will be spending Christmas here in Jersey. Well, at least we have our new apartment with triple glazing so we will be able to keep warm.
Good afternoon everyone.
Gosh Lou, I think you must have driven more miles in one week than I manage in a year.
It is good to hear that Hannah has now moved into her Uni flat and has settled well. It is really great that she has friends in Falmouth as it must be very challenging to make such a big move not knowing anyone.
Wow, the 17th September 2015 is a date you will always remember. You have been through an awful lot but you are still here, looking after your family and garden, baking cakes and painting. I was diagnosed four years ago come December and it has certainly changed my life. The initial prognosis was not the best, but treatments are now much better and more effective and I am in a good place.
Apart from the medical advances, I think that Cancer Support groups are more readily available and MacMillan Cancer Support have been a wonderful help to me. MacMillan Jersey like many charities, have suffered financially due to the Covid virus and we are all very busy now doing afternoon teas, walks, runs etc. and other fun ways of raising money to keep things going.
Mustn't forget to mention LBW where I have met so many lovely, courageous people and enjoyed so many chats.
Good morning everyone,
Well that was a week and half in our home!
Sunday morning, the sun has just come out from behind the clouds, sat with a cup of coffee thinking of things to do today.
In the garden I think, one of my happy places, haha.
This week we travelled to Cornwall three times, yesterday being the latest. Another long day. Moving in to uni was not simple, mostly because the accommodation was not finished in being built. Literally. We arrived on Monday and there was nowhere to stay. It was a building site. Crazy. Several phone calls later, and we finally got temporary accommodation normally reserved for teachers. A wonderful one bedroom flat with a balcony, and views over the harbour!!
This was a godsend, in the circumstances, as the week was fraught with stress and unknowns. Added to which when we unpacked the car we found we had left the key to the roof box at home!! Can you believe it!!!! I had to drive down again on Tuesday to deliver all the clothing, bedding, etc!
On Friday we had the go ahead to move in properly, her flat was finished. I think the builders had been there way over their allotted time limit. So we left early and drove down to transfer Hannah from the temporary flat into her uni flat. It went well, she has settled, we unpacked everything with her, after cleaning all the builder dust and sand off everywhere. The builders still have a lot of work to do on site, so there will be noise and dirt and workmen around for a while.
Hopefully now, she will find her feet quickly, and settle into uni life. Good news, she posted some photos from a walk to the beach, and a friend commented on them. Turns out this friend is studying at Falmouth too, we didn't know as hadn't had contact for a while. So there are two others she knows now. This is brilliant news. We have spent a long time setting up support networks for her, as she is vulnerable with a medical condition, so knowing there are a couple of people who she knows will also help her.
Anyway my rambling is over now, haha, sorry! The cats are all over us, having missed us yesterday, they are so cute.
Off into the garden, to relax and chill. I hope you all have a great Sunday too.
On another note, this week, the 17th, marked the day I was diagnosed with breast cancer.
Five years ago, all is well (well apart from all the post-cancer stuff I know many of you will understand about!). Still here, no cancer, living life the best I can. 😁