Home Activity

Recent Activity

Activity List

  • NanaBubbles earned the First Anniversary badge.
    Thanks for sticking with us for a full year.
    March 22
  • Thanks for sticking with us for a full year.
    March 21
  • Trent333 earned the Photogenic badge.
    Little things like uploading a profile picture make the community a better place. Thanks!
    March 22
  • Trent333 changed their profile picture.
    Thumbnail
    March 22
  • ST2020, Tonge1955, Robio, Jojo50, Dawn3 and 5 others joined.
    Welcome Aboard!
    March 20
  • SusanW60

    Hello Karin please help me get some perspective on my situation! I have myeloma but following 6 months induction therapy and a successful stem cell transplant last February I am currently in remission and my last blood results three weeks ago looked good. Coronavirus was just creeping into view so I took the opportunity to ask my consultant about the risks.

    He is a new consultant and I have only met him briefly twice and I haven't quite worked him out yet. His attitude seemed to be that it was "being hyped up" those were his exact words. He then said that I was very unlikely to catch it and if I did I would be ok! I left feeling very reassured. Fast forward three weeks and I find myself reeling to discover that myeloma patients are placed in the highest risk category no matter what stage they are at whether in treatment or in remission!

    I understand that those of us in that category will be contacted individually from Monday 23rd onwards whether by letter or phone call I do not know .

    Really struggling now to come to terms with this new reality as I'm sure many people are. Need to stop catastrophising

    Thanks for listening

    Sue

    March 21
    • KarinSieger
      KarinSieger
      Hello @SusanW60

      Thanks for getting in touch, Sue. I hear your frustration and fear.

      I don't know on what basis your consultant made such comments. Based on what we know now, they are clearly unhelpful and not reflecting reality. And knowledge seems to advance constantly. What we are told today may not hold truth tomorrow. These are very uncertain times.

      A cancer diagnosis can already take all certainty and safety from us. The coronavirus crisis can feel like pulling the last bit of safety net from under our feet.

      What you feel is normal, which is not to minimise the seriousness of it. As a past and present cancer patient myself I share a lot of your feelings. I think to some degree we need to make decision for ourselves about how we want to handle the corona crisis. Personally, I am told my immune system is not compromised as my chemo was in 2012 and my current treatment approach is different. I decided a long time ago (rightly or wrongly) to remain extra vigilant and take extra precautions now.

      To my mind this is not catastrophising. I am exercising "agency", I take charge, I make choices - which is so important at a time when we feel lack of control and helplessness. Knowing we have a plan and do not taking everything others say at face value can be reassuring and calming.

      I suggest wait for what you are told from 23rd onwards. I think self isolation and lockdowns are coming our way. Be prepared, in case you need to start early with any of that. Focus on the practical stuff, not in a panicky way. Have plenty of "virus out times" during the day, where you ban thinking about it, media etc. Connect with the good and nice stuff. We need to conserve our mental and emotional energy. Stress weakens our immune system!

      I hope this helps. Feel free to keep in touch.

      My very best wishes for you!

      Karin
  • LizzyB73 earned the 5 Agrees badge.
    You received 5 Agrees. We like that.
    March 21
  • I feel so alone I do t have a partner but I'm ok about that.im actually content but very lonely I have no friends were I am it's difficult for me at the mo.i keep smiling through.looking for some good conversation with others.can anyone help.

    March 20
  • JM61, Geena1, DD1, Rozalia and Nixster earned the First Comment badge.
    Commenting is the best way to get involved. Jump in the fray!
    March 20
  • Keeping strong x

    March 20
  • Sharyn earned the 5 Awesomes badge.
    You received 5 Awesomes. We like that.
    March 19
  • Fleuri and Juls joined.
    Welcome Aboard!
    March 19
  • purple2020 and Denise89 earned the First Comment badge.
    Commenting is the best way to get involved. Jump in the fray!
    March 18
  • Blanka_C earned the 5 Insightfuls badge.
    You received 5 Insightfuls. We like that.
    March 19
  • Blanka_C earned the 100 Comments badge.
    Getting this far requires gumption, something you have in spades.
    March 19
  • Kate190850, purple2020, Denise89, Brownie, Notnih and 2 others joined.
    Welcome Aboard!
    March 18
  • Denise89 earned the Name Dropper badge.
    Mentioning someone in a discussion (like this: @Name) is a great way to encourage dialog and let them know who you’re talking to.
    March 18
  • Digital Marketing Company In Bangalore, India: DigiMark Agency is one of the Best Digital Marketing companies in Bangalore. Ranked among the Top digital marketing agencies in Bangalore.

    visit: Digital marketing services in bangalore

    March 18
  • Welcome Aboard!
    March 17
  • Lokis_nana, Sharyn and Smca earned the First Comment badge.
    Commenting is the best way to get involved. Jump in the fray!
    March 17
  • JayneTame earned the First Anniversary badge.
    Thanks for sticking with us for a full year.
    March 17
  • JSL, Jean4 and momwith2boys joined.
    Welcome Aboard!
    March 15
  • Sharyn earned the Photogenic badge.
    Little things like uploading a profile picture make the community a better place. Thanks!
    March 16
  • Sharyn changed their profile picture.
    Thumbnail
    March 16
  • LizzyB73 earned the 5 Likes badge.
    You received 5 Likes. We like that.
    March 16
  • Jean4, momwith2boys and ive6249 earned the First Comment badge.
    Commenting is the best way to get involved. Jump in the fray!
    March 15
  • momwith2boys earned the Name Dropper badge.
    Mentioning someone in a discussion (like this: @Name) is a great way to encourage dialog and let them know who you’re talking to.
    March 16
  • peter63 and LizzyB73 earned the 10 Comments badge.
    No longer a one-hit wonder! It looks like you’re going places.
    March 15
  • Bestie, Sharyn, Cazraz, DebF and Po300 joined.
    Welcome Aboard!
    March 14
  • Hi..I was diganosed in dec 2015 with breast cancer, I had a masectomy in jan 2016&was given tamoxifen for five years.Everything was going good until 2018 when I was taken into hospital with suspected appendicitis,had my appendix removed. 6 weeks later I was called back to see the consultant&was told it was appendix cancer(rare).i then had to have another op to remove part of my bowel which had cancer cells too, they also discovered at that time two spots on my liver.Had an m.r.i scan which showed I had secondary stage 4 liver cancer5(tumours).After four major surgeries&3mths of chemotherapy that year& another 3mths in 2019 I'm now in remission(cancer free) my conern at the moment is with the coronavirus am I at a higher risk due to the cancers I have had&do I need to take extra precautions.

    March 15