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Veriterc

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Veriterc
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  • Liz I had breast cancer over ten years ago. Treatment finished, and no-one told me that years later I would present with so many long-term side effects (major heart op; osteoporosis, neuropathy, nausea, etc). I Handling all the complex problems I …
  • Hoddy, What you are experiencing is a well-known side effect of cancer treatment, and I am sorry to be the bearer of bad news, but the 'nasties' in our drugs, that kill off cancer cells, also play havoc with our other cells. I used to be a beauty …
  • Thanks for your supportive words, and I know others like yourselves give us tremendous support for which we are very grateful. The one thing that bugs me is the lack of support from medical professionals, who should know better. The way they try a…
    in Moving on Comment by Veriterc March 2020
  • With all the millions £s that we donate to cancer research, am I being selfish and wishing a little could be spent on reseaching long term side effects, and what to do about them? So many of us have issues, paticularly with fatigue,you would think …
    in Moving on Comment by Veriterc March 2020
  • Jackie What you say hits the spot! Neuropathy is nasty, and as far as I can find out, the NHS tries to pretend it doesn't exisr - but it does. You might like to look at American cancer hospital websites, or ASCO. These all acknowledged Neruopathy…
    in Moving on Comment by Veriterc March 2020
  • In the same vein, I was waiting in Outpatients - and started to play a word game with the nurse (she came up with best words) ARTERY – – – – – – – – – The Study of Paintings CEASARIAN SECTION – – – A Neighbourhood in Rome CAT SCAN – – – – – – – – – …
  • I agree that a cancer diagnosis is different, and suspect this is because the drugs we are given can produce so many side effects. Doctors are over-worked, and don't have time to give us the individual attention we need to help with these - so ofte…
  • Rob Sadly, as hydro pools are NHS ones, they don't allow public in. The lie empty, when people would love to use them! Such a bad use of public funding. I can see that £50 would mount up - but with Trump saying he's not interested now in NHS, makes…
  • Rob, What you tell me sounds so sensible. Here in UK we pander to malingerers, time-wasters and those so arrogant that they make appointments - then don't think of others and never cancel as it's too time consuming for them to lift up the phone a…
  • I managed to pick up almost every side effect going. Being treated in UK the NHS isn't very good at dealing with 'unexpected incidents' (they don't think 'what if....) so I set up my own website aftercancers.com on how to deal using evidence-base…
  • Some of us manage to fall through the cracks after treatment finishes, and get no support at all due to staff shortages etc.  So I have decided to organise a Wellness Day to tell fellow survivors what is available.  Why not organise one yourself?  I…
  • I have Neuopathy.  Found this was ignored where I was treated, but found the brilliant MD Anderson website.  This gives so much information.  Agrees that this is a recognised side effect.  Why can't British hospitals give us this?  The brilliant Dr.…
  • I find I can copy and paste some of the many emails I have to send out, managing my cancer care - and this gives lots of content for www.aftercancers.com
  • Any tips on how survivors can get more effective care, and arrange this directly rather than have to channel a request for an appointment through that useless organisation C(r)apita?  All my GP's requests for appointments for DEXA scans, check-ups, …
  • I agree re La Roche Posay.  This was specially developed for cancer patients, clinically trialled etc.  The French really take our skin problems seriously.  Their centre at La Roche Posay treats about 10,000 of us a year with skin problems.   Washin…
  • Oh for dermatologists who understand cancer side effects. I had painful spliitting nails, and commercial products weren't strong enough to treat these.  It wasn't until I came across an article from a doctor at Guy's skin clinic that  found he reall…