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4Gretton ✭✭✭

I just came across this. It was good to hear somebody else say out loud the things that I have thought or felt so many times I admit I shed a few tears. But I think it is always reassuring to know we’re not on our own (though through finding this LBW group I now know that that is not the case) I share it, not to make you cry, but in the hope that it might help some of my buddies in the group Ive not posted for a while, I hope you’re all doing well. I think we’ll all be doing a lot better when this blinking rain stops!!! ok... here’s hoping I’ve pressed the right buttons to share this YouTube clip🤞🤞🤞

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4Gretton
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  • I just popped in for the first time in ages and saw your nice post @LouiseJ @PositiveLady10 you sound like you’ve had a rough old ride but despite some down days, handling it well. Stay strong and use this site to vent when you need to-we’re all here to support with absolutely no judgement because we all “get it”. This…
  • Thanks @LouiseJ , will check that one out... just realised I misspelled mine... it should be Where the Crawdads Sing by Delia Owens xx
  • @rickyd @LouiseJ @RobertA Hi everyone, just been having a catch up. Nice to”meet” some new faces, especially in these strange times. Was interested in all the chat re peripheral neuropathy as this is something I suffer from thanks to chemo. I sometimes have a break from it and then ....hello.. it’s back again, though I’m…
  • Sorry @Ashman87 .... in the above... that should have read... you are not alone in this.. I would blame predictive but I’m also a rubbish typer!!!
  • Hi @Ashman87 Im sorry to hear of your diagnosis. It’s a tough one isn’t it and not a very glamorous one to be suffering from! I never thought my bowels would be talked about so much and never realised how disfunctioning ones could be so painful and how much would affect my day to day living. I won’t go in to all the…
  • @Tyler1 I don’t know what chemo you’re on, but hang in there. I had infusion at hospital and then sent home with 10days tablets, 4 days off and then back to hospital to start all over again. The important thing I learned from it was to keep talking to your oncologist and nurses on the unit to let them know how you’re…
  • For me it’s a sachet of laxido night and morning, plus 2xsenna tablets at bedtime. It’s funny how since having bowel cancer I feel absolutely able to speak to complete strangers about my poo without any embarrassment!! Good luck
  • Thank you @RobertA for your kind words. I agree that this is a great community we have here. To add to the money raised by my children for Queenscourt this year, I decided to give all the money I would have spent on Christmas cards and the postage to the hospice and posted my intentions on FB. One of my buddies pointed out…
  • Thank you Lou. As is often the case, there were tears and laughter today. It was good to meet Richards children and grandchildren for the first time (they live abroad) and see his face and mannerisms in them. He had strong genes. His sense of humour was reflected in the playing of the Monty Python,”always look on the…
  • It’s a tough one. I know how you feel. I am going to a funeral myself tomorrow. A friend was diagnosed with colon cancer just after I’d had the same diagnosis. We shared waiting rooms and the dark humour that only those going through it understand. I then found that as well as a small spot on my lung, it had spread to my…
  • Hi @susan1958 have you tried insurewith? I’ve used them a few times after really struggling to get cover to go to my sons wedding in Canada. Most companies refused to insure me, others quoted ridiculous amounts. The company was started by Fiona McRae a cancer sufferer who had a problem herself getting travel insurance.…
  • Hi @WeightBender my hairdresser wasn’t keen on putting colour on my hair whilst I was having chemo. I had one last touch up before I started treatment and then after that (I’m mid brown..lighter in the summer with grey coming through) after that I used a product called Wow on my roots. It’s a bit like an eye shadow with a…
  • Just been having a catch up and saw your post @Lisejs29 I felt so sorry for you to have this diagnosis so close to your daughters wedding. I know how you feel. I was in similar position. Colorectal cancer with metastasis in liver and lung. My specialist was very understanding and let me delay op til after wedding. I was…
  • That’s a good idea @LouiseJ I’ve been meaning to look at that sleep page . Thanks X
  • @Sbuzz_66 Hi Sharon and welcome . I’ve just been reading the messages above. I’m so pleased that @Sunshinedaff and @RobertA have made contact with you, they talk a lot of sense and are very supportive. This is not my territory (female) though my 91 year old father has been on the 3monthly injections for many years. I do…
  • Hello all, on what is at long last a sunny day. Ive been trying to catch up in all the various posts. Well done on chemo @jacksprat_x1 ... you’re getting through them...no7 on your last post. It will all be worth it. It does seem to go on for ever at the time, I know. But sounds like things are better for Norm and Jasper -…
  • They’ve done really well with fund raising @Sunshinedaff with gift aid they are now over £1000. I’m very proud of them all. Hope you’re right about a dry August, though we’re sunny today at least. Does anyone else find that full moon affects their sleep? Had a rubbish sleep last night. Always seems to be the case for me…
  • What a nice amazing setting they have there @RobertA and what wonderful work these people do. I was really frightened when it was first suggested I go to our hospice for help with pain control. They were amazing and helped me in so many ways . I had help with pain relief and counselling there and reflexology. Always so…
  • Hello lovely peeps. Sorry I’ve been absent for a while. Hope you’re all going well(despite wrong co-codamol, @Sunshinedaff !) Hope you enjoyed the cricket @RobertA . I was in Manchester at w’end, not for cricket though. I was supporting 3of my children and 2sons-in-law raising money for Queenscourt Hospice who were so…
  • Well done @Deetheshopper keep on fighting and kicking butt. The team is behind you
  • You really must take care of yourself.. You are no use to anyone else if you don’t look after yourself. It’s not being self centred - it’s being sensible. Anyway, after all you’ve been through you absolutely need to take time for yourself to get yourself strong again, and to take time out to get any rest that you need.
  • [email protected] ...yes me!!! I’m without a stoma and am absolutely full of awe for those who have them and cope so well. I had the full talk from the stoma nurse before surgery so was certain I would be waking with one. I feel bad now for the way I sobbed on her shoulder! Was such a scaredy-cat in that regard
  • @Lola Im so sorry to hear of the tough time you’ve been having. Thank goodness the lymph nodes are clear . That’s one less battle to fight, hey! @Sunshinedaff and @RobertA are so right in their comments. Your poor body has been through so much and now your mind is trying to play catch up whilst you still have so many balls…
  • @Lisejs29 Hope results good for you. Pottering is definitely the way to go with regular rest breaks
  • Hello there and welcome @Karenoffrintonia I too suffered badly with neuropathy after chemo for bowel cancer. Unfortunately there doesn’t seem to be a great deal of help out there for this. I think that as with many cancer treatments the medics thinking seems to be that they’ve got rid of the cancer so what’s the big deal!…
  • Hi Capox gang. Your descriptions of the affects of this chemo brought back memories. I too was on this . Infusion at hospital and 10 days of tablets at home(first4 days with steroids also) 4days off all meds and then back to hospital to start the 14day cycle all over again. I too found that the side affects were…
  • @Deetheshopper sorry to hear about your emergency surgery . When you said you were waiting in hospital for bowel movement, it brought back many memories....I’ve done a lot of that!! I think I must have the most stubborn bowel!! I have to dose myself each day and then can get that wrong and end up the other way. I’m getting…
  • Just found this forum my lovely buddies and I’ve had a great laugh reading it! Well done on the swimming @Sunshinedaff I hadn’t been for almost 2weeks and I had missed it, but went this morning and although tired now I do think it helps to loosen up these old joints. It means nothing much else gets done for rest of the day…
  • Good morning everyone. I’m playing catch up on all the comments since I last checked in. So first of all would like to welcome our newbies. I too have only recently found this wonderful supportive arena.... isn’t it fab! We’re not on our own after all!! I have already benefited from this great community, so keep checking…
  • I had big problems with getting insurance when I wanted to go to Canada for my sons wedding. Most wouldn’t insure me. Those that would were quoting thousands of pounds. My daughters journalist friend got on the case and found insurewith. The woman that founded the company had had the same problem getting travel insurance,…
    in Holidays Comment by 4Gretton March 2019