patient experience
Discussion List
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New to the siteHi all I was diagnosed with breast cancer (triple negative) in October 2019, to say it was a shock … -
TUG proceduresHi Everyone, I have had breast cancer twice within three years of each another, and on both occasio…
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Implications of Covid-19 on treatmentIs anyone else worried about the impact on their treatment plans? I have been told that oncologists… -
Cannabis oilOn my first session of chemotherapy could not sleep at all, now on second and not far away from thi…
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Breast cancer and LymphoedemaWe recently published a blog post documenting (some) of Maureens journey with breast cancer and lym… -
Anyone have any experience using Noscapine?Hi Everyone, Is anyone on this forum familiar with using Noscapine as a breast cancer treatment? I …Lillian864 38 views 1 comment 0 points Most recent by Sunshinedaff Coping With Treatments & Side Effects
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Are you interested in becoming a patient advocate?When we are ill, we may need to advocate and speak out for ourselves or others. Hi, Some people use… -
🎧 Listen to the podcast: Why breast density matters and top tips about patient advocacyListen to my interview with breast density patient advocate Siobhán Freeney, who has also been trea…
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RadiotherapyHt everyone' Started my radiotherapy in Wednesday 2nd Jan, so had 3 so far had a break with the wee…wisteriablue 776 views 29 comments 2 points Most recent by Peter Coping With Treatments & Side Effects -
Aches and pains during sleep?We know lots of people get extra aches and pains during chemotherapy and other treatments for cance…
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ChemotherapyHELP! I recently started chemo again for the third time in six years. I was put on exactly the sa…binty74 115 views 2 comments 0 points Most recent by Sunshinedaff Coping With Treatments & Side Effects -
HeadacheHi since starting chemo ( just done 3rd session) I have had a constant headache. can anyone advise …
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Hello , New here :)Hello everyone, My name is Roz and just joined. I am 55 and recently been diagnosed with Inoperabl…
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Eating with no stomachHello All Got a question re eating after total gastrectomy. Had op three weeks ago. Eating still di…Rolly 61 views 6 comments 0 points Most recent by Sunshinedaff Coping With Treatments & Side Effects -
HelloHi i have just recently been diagnosed with primary breast cancer. I am 49 years old it’s all been … -
Colorectal surgeryi had a camera put up on Wednesday last week and was just wondering if anyone else had this done as… -
Cancer-free!I saw my oncologist on Thursday, and he says that I am now cancer-free! All future treatment will b… -
Lung cancerI'm due to have half my lung removed tomorrow anybody else had this done how was it for you.Candyfloss 71 views 2 comments 0 points Most recent by Kenzie123 Coping With Treatments & Side Effects
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Sentinel node biopsy painHello! I am a 51 year female recently diagnosed with invasive breast cancer but thankfully early st…fifi67 150 views 5 comments 0 points Most recent by GrannyMosh Coping With Treatments & Side Effects
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Cancer necessitiesHello fellow my cancer friends, my name is Mathilda and I am so lucky to be giving the all clear.My… -
Polycythemia VeraHi Diagnosed with Polycythemia Vera 2014 a rare blood cancer which thickens the blood which leave…
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I have had radiotherapy for my third vulva cancer,And also have had to have reconstructive surgery , I am still very swollen and get severe pain all …Accepted Answer Rosegarden 53 views 4 comments 0 points Most recent by Sunshinedaff Coping With Treatments & Side Effects
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Anyone with Rheumatoid arthritis and cancer?Hi everyone, I’m new here and just wondered if anybody has experience of being treated with immune …Accepted Answer NanaBubbles 91 views 7 comments 0 points Most recent by NanaBubbles Coping With Treatments & Side Effects
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Returning to workHi I have decided to return to work midway through chemo. I've had 3 of 6. Now everyone is saying t…
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New DrugsIs there anyone on here which has been given the combination of drugs,Dosetaxol,Herceptin and Pertu…Answered PositiveLady10 72 views 4 comments 0 points Most recent by PositiveLady10 Coping With Treatments & Side Effects -
Feeling lowHi never been on a forum before but feeling a bit low,my husband had bowel cancer 3years ago and be…den 151 views 15 comments 0 points Most recent by Sunshinedaff Coping With Treatments & Side Effects
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Post chemotherapy joint painHi , I am just under 5 weeks from my last session of Chemotherapy ( Fec-t) and I am experiencing j…
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Ileostomy reversalJust had a colonoscopy , and ct scan. My surgeon has given me a date for the reversal of my ileosto…
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Discomfort when sleeping - either too hot or too cold!Sweating and overheating are common side effects of chemo and radiotherapy and many experience rest…hessom 185 views 12 comments 1 point Most recent by Sunshinedaff Coping With Treatments & Side Effects
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Vein InflammationHi, When I had a cannula put in for my second chemo session,the nurse placed it in a small vein jus…PositiveLady10 52 views 2 comments 0 points Most recent by PositiveLady10 Coping With Treatments & Side Effects