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17.5 cm mass on right ovary

Hi everyone,

I posted on here a few days ago, probably sounding like an insensitive crazy person to those who have already been diagnosed, about how I thought I had liver cancer because of all of these symptoms I was experiencing, alongside sudden pain all around my liver that happened very quickly.

I was praying I somehow had digestion issues so I went to a gastroenterologist the other day who basically just told me to get tests done and that we would discuss the results in 1-2 months. He told me to take metamucil....

Well, it just didn't sit right with me at all. I knew something was wrong. I've known for the last month. Cancer. Cancer. Cancer. Is all I could tell myself. I decided to take myself to the hospital because your gut instinct is always right.. I refused to lay around, driving myself absolutely insane, for an entire 30 days wondering what was wrong with me, and I knew the hospital would tell me right away. I didn't want to be that person, but I had to, and I'm so glad I was.

About 5 hours into my stay at the ER (I was shocked at how quickly they were moving patients along with COVID-19 happening. My hospital has 2 stars on Google with wait times being as long as 12 hours. I was called back in less than 12 minutes) I found out I had what the title states - according to my doctor, "A huge 17.5 cm mass on my right ovary" that is overtaking and pressing on all of my other organs on that side that he, "most definitely believes is cancer."

I haven't had a fever, and not much of an appetite loss aside from being so anxious and worried over the last week that I can't eat and work myself up so badly that I throw up, but I wake up every morning drenched in sweat as of the last 2 weeks. I've lost weight. I have constant joint pain as of the last week. I'm dizzy and lightheaded with blurry vision all the time lately - I don't know if this is a sign of cancer but my neurological issues have drastically changed.

They don't have any specialists at my hospital unfortunately so I have to call a couple places in Baltimore tomorrow and see which one can take me sooner to confirm the diagnosis.

I'm completely numb right now and it hasn't even sunk in yet. No one in my family has ever had cancer. I am healthy. I just turned 30 a month ago. My bloodwork came back perfect. It has for a year now. They always told me everything was fine. I was good to go. And now I "most definitely" have cancer?

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Comments

  • LouiseJLouiseJ Posts: 850 ✭✭✭✭✭

    @greenbean48 @LizzyB73

    Hello again,

    I know I replied to your other post just now, but thought I would do so here too.

    Liz, I hope you don't mind me tagging you here, I thought you may have some insight and wisdom to offer @greenbean48 who is going through such a dreadful, terrifying time right now.

    I understand you are in total shock at what the doctor has said, is he an oncologist? Or are the oncologists at the other places you need to call tomorrow?

    It is good you have been seen so promptly, I am glad you went to the hospital and the doctors were not dismissive of your concerns.

    Perhaps it is a benign tumour, not malignant? I think other tests will have to be done to confirm that.

    Have you told your mom? Can you go home? I feel you have been so anxious and worried for so long, you must feel like you are in turmoil and beside yourself with fear. I think having someone around you who can support you is really important right now. It is very, very difficult to go through all of this on your own. I can hear your struggle in your words.

    I am here for you if you just need to talk it out, without having a response etc,

    Please let me know how you get on with the other hospitals tomorrow,

    Thinking of you,

    Lou xx

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    Hi @greenbean48

    Just checking in following your whirlwind experience in ER and your massive shock diagnosis.

    Can hear how scared you are understandably, it is really important to make sure you have all the facts of your diagnosis and that will take a time, while you have tests that are relevant for the Drs to find out more and to offer a treatment plan that is right for you.

    Please do get back in touch once you know more and we can support you further

    take care


    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • greenbean48greenbean48 Posts: 11

    @LouiseJ @Lizzy

    Thank you both so much for your support. It means everything. Lou, I'm sorry I hadn't gotten back to you sooner. I've just been a wreck. In bed all day with the blinds closed. I've shut my business down for the time being.

    I do have some news though. So my oncologist comes in. (The women who were at this place this morning are some of the sweetest women I have ever met btw).. She introduces herself, of course. Then says, "So they really terrified you at the ER the other day, didn't they? You're not the first and you're certainly not the last patient they will do this to" as she is visibly annoyed and clearly has had this conversation plenty of times..

    I'm confused and I'm starting to realize what she's saying and my world that has been absolutely shattered to bits and pieces for the last 4 days and 12 hours starts to come back together. She sits across from me and tells me there is absolutely nothing on any of my tests out of the so many that have been run that show this huge mass is cancerous. I asked her why on earth he tell me that I have cancer and would discharge me with "ovarian cancer" on all of my paperwork and then she basically implied that he's an idiot who doesn't know that a huge mass can be something other than cancer.

    She said it's extremely unlikely that it's cancer and she said the doctor should have never ever said what he did to me. The paperwork he gave me was generic paperwork for a patient who would have had a surgery and an actual biopsy and was recovering from the surgery and was being discharged, not someone just in the ER for abdominal pain. She seemed horrified.

    I have my surgery in 2-3 weeks. I have to wait for additional bloodwork to come back before they set up an appointment. My liver enzymes keep showing that something is off, (they are slightly elevated) so I'm really scared about that too, but she said if anything, my ovarian mass is borderline cancerous and they will just have to remove it and I won't have to do chemo.

    I'm so confused at this point. I don't know what to believe. I still believe it's cancer or at least something else in my body (maybe also my liver?) has gone completely awry. My body still keeps twitching and all day long it feels like someone is taking a bunch of needles and poking them into my skin everywhere. I haven't been waking up in the morning covered in as much sweat as I was, but I still am losing weight.

    I still feel like a dead man walking, but I thank my oncologist for actually showing me compassion and support unlike the doctor who handed me a death sentence and then told me I should be out of the ER within 20 minutes.

  • LouiseJLouiseJ Posts: 850 ✭✭✭✭✭

    @greenbean48

    Hello,

    It is good to hear from you, I have been thinking about you. No need to apologise for not replying, completely understandable! I know you have been under a tremendous strain with the stress, anxiety and pain you are in.

    I am so glad the oncologist has been able to reassure you, in part at least, and kick into touch much of what the other doctor said to you. It is appalling that you were even given that kind of erroneous information in the first place.

    Perhaps your body has gone into overdrive with nerve/sensory issues as a result of the extreme stress and mental anguish you have experienced?

    I think from now onwards you will be in the best care as the oncologists continue to carry out further testing, bloods etc to determine exactly what you are facing, and then they will set out a plan accordingly to suit your circumstances in the best way possible.

    I know you now have a small wait until any action is taken, in this time, try and rest, eat and drink to remain as healthy as you can, to gain some strength. This will help you in the coming days and weeks.

    Are you still with your mom? I hope so.

    If you feel like a chat contact me anytime, ok?

    Sending you a huge hug,

    Chat soon,

    🤗🤗

    Lou xx

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