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Hello to old friends and new ones...

LouiseJLouiseJ Posts: 844 ✭✭✭✭✭
edited June 2020 in Cancer Coffee Break

Good afternoon everyone,

I have been thinking about our community and all the wonderful members who are a part of it.

I was wondering how some of you are who haven't been on here for a while? I am mindful of not tagging you, as I know how things can change when going through cancer. You may have completed treatment and be recovering and moving on with your life post-cancer, or still going through it all. But rest assured what ever it is, I know and remember your names and stories, and would love to hear how you are getting on.

Remember we are always here for anyone, this community has built up a very caring nature and 'family' feel. You will find others who listen to you, cry with you, laugh with you, share stories and tips with, and generally chat about anything you feel like chatting about.

The pandemic has led to many needing to shield from others and in doing so may have become more isolated than they wish to be.

So if this lands in your inbox, please know it is a genuine message to say hello, and we hope to hear from you.

Chat soon,

Lou xx😊


  • PositiveLady10PositiveLady10 Posts: 77 ✭✭✭

    Hi Lou,

    Really lovely to hear from you,how are you?

    As you are aware I finished my treatment in January,I wasn’t allowed the last 4 Herceptin treatments,because of a reduced heart function.

    I have now been told that the Chemo treatment has caused damage to my heart,and have now been put on a beta blocker and an ace inhibitor.

    They have assigned a Community heart nurse to me,who is wonderful,she rings me every week and is with me every step of the way.

    The tablets can have an effect on your kidneys so you have regular kidney function blood teats.

    Through having this blood test they have discovered that my cholesterol is very high and yesterday prescribed a statin to try and bring it down.

    I find it unbelievable that after over a year of breast cancer treatment,including a mastectomy,that it has caused me these problems.

    I did have a wobble yesterday,but have picked myself up today.

    I am optimistic and am doing what I have to do,I have the most wonderful husband,who has been there every step of the way with me,and we will get through this as well together.

    I hope that you are keeping well and looking after yourself.

    Speak soon,

    Barbara x

  • LouiseJLouiseJ Posts: 844 ✭✭✭✭✭


    Hi Barbara,

    How lovely to hear from you, thank you so much for getting in touch.

    I am so sorry to hear about how the chemotherapy has had such a lasting impact on you, and damaging your heart. I do remember that you had to stop the chemo because your heart function had diminished. It is good to hear you are getting regular support and checks from the heart nurse. Those meds sound like strong ones, I hope the side effects are bearable for you, but are effective too.

    I hope the statins do help to reduce the high cholesterol levels for you, I was on those for a while pre cancer diagnosis, but they changed something else, my liver I think, so it got stopped.

    I do understand your wobble, yes after going through all the treatments to be rid of the cancer, to find parts of your life seem harder and worse in places is really hard to deal with. It does take a long time to adjust to a new way of life that wasn't planned out that way.

    I am glad you feel brighter today, being optimistic and hopeful is an excellent approach to take. It is wonderful that you have a very supportive husband and your beautiful family and grandchildren are all there to rally round and support you too.

    I am doing well, apart from a migraine today, I am still cancer free, and managing as best as I can with the aches and pains in my bones and joints etc from medication and treatment. During lockdown I have spent time sorting the garden, growing fruit and vegetables which are coming along very well, as well as the flowers and plants. I have even encouraged the girls to join in, which is a first! hahaha!

    I hope you are having a peaceful evening,

    Chat again soon,


    Lou xx

  • RobertARobertA Posts: 1,273 ✭✭✭✭✭
    edited June 2020

    @LouiseJ @PositiveLady10

    Good evening everyone

    What a lovely message Lou.

    I so agree with everything you have said. This is a wonderful community thanks to lots of special people who have told us their stories and shared their cancer journeys with us.

    It would be lovely to think that people who have not posted for a while have been able to move forward with their lives and are in a good place in every respect.

    Oh Barbara, you have had a tough time. It is hardly surprising if you have a little wobble occasionally. It is great to know that you have such a supportive husband. I know that I would have really struggled without the loving support of my wife Mary who has lived through the cancer journey with me.

    Reading both of your comments is a powerful reminder that the physical side effects of living through cancer never really leave us. It is special to know that we have this Community to share our stories and to support and encourage each other through the cancer journey and beyond.

    Rob xx

  • PositiveLady10PositiveLady10 Posts: 77 ✭✭✭

    Hi Lou and Rob,

    thank you for your lovely comments, the support we give each other in this Community Forum is wonderful.

    Lou, you mentioning gardening in lockdown, I have also been doing lots outside, I grew runner beans from last years saved beans, grew them on and my husband planted out 55 beans for me.

    I found that going through my treatment last year, doing a bit outside when I was able, was my saving grace, I so enjoy it, it takes you to “another place”, in your head.

    Rob, we are both so lucky to have such wonderful partners, as we both know that some do not have that support.

    My husband went through bowel cancer himself, so to hit us both has been a big blow, but thank god we are both here to live to tell the tale.

    If there is one thing I’ve learned, is that people and things we took for granted, have made me realise just how important they are.

    The little things are not important anymore, cherish what you have.

    Sermon over, take care ,

    Barbara x

  • 4Gretton4Gretton Posts: 41 ✭✭✭

    I just popped in for the first time in ages and saw your nice post @LouiseJ

    @PositiveLady10 you sound like you’ve had a rough old ride but despite some down days, handling it well. Stay strong and use this site to vent when you need to-we’re all here to support with absolutely no judgement because we all “get it”.

    This Coronavirus has been a weird old thing hasn’t it? When I was first ill I looked forward to all the treatments being over so I could get back to normal. I guess I must have been very naive in thinking my body and my life would be the same again. We have no choice though do we, but to adjust and find the good in what we do have, despite the disappointment. I don’t know about you guys, but this virus seems in some ways the same. When we hopefully, get through it all, our lives won’t quite be the same. And as with cancer, there’s that sense of always checking over your shoulder for the next one

    I hope you’ve all kept well through this. Some of you mentioned gardening.. that has been the main thing that has kept me sane through this (despite attacks from rabbits, slugs,moles,birds..) and we have for the most part been lucky with our weather, especially in those early lockdown weeks.

    Lovely to check in with you all

    All the best xxxxx

  • LouiseJLouiseJ Posts: 844 ✭✭✭✭✭


    Hello! 😊

    It is so great to hear from you again!

    I am glad you are keeping well, especially throughout this time with covid. You are right many of us have found being able to be in the garden during lockdown has been a great help, having the warm weather is a great bonus too. Although as I write this it is very damp outside, my two cats are busy trying to find the mouse they saw last night, haha. They remembered where it was, of course it has moved.😁 I have not been able to catch it and re-home it in the woods yet, I am hoping it doesn't decide to help itself to the vegetables I am growing.😂

    Yes, you are right, life has changed for everybody, we understand that when going through cancer, but now we have to adjust again to how things have to be for quite some time I think.

    I hope you continue to stay well,

    Chat soon,

    Lou xx

  • RobertARobertA Posts: 1,273 ✭✭✭✭✭


    Hi. Lovely to see your post and read your comments. Wow, you are so right, whatever made us think that everything would be the same as before cancer when our treatments are done? As you say, we do have to make adjustments but we get on with it and we are thankful to be alive and kicking. We have been lucky in Jersey as the virus has not impacted us in the way it has in England. Unfortunately, we started to allow tourists into the Island last week and already four of them have been identified as carrying it and two of those have fallen ill.


    Oh Lou, I love hearing about the antics of your cats. How funny that they are hoping the mouse has stayed put, bless them. Let’s hope it doesn’t eat your vegetables, but heads for the safety of the woods.

    Rob xx

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