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Any advice would be appreciated

Butterfly88Butterfly88 Posts: 4
edited May 2020 in Carers Corner
Hi am here on behalf of my mum am just searching for answers or just anything no matter how small of a way I could maybe help her I feel helpless and am banging my head against the wall with doctor I just need some sort of answer for her. To cut a long horrible story short my mum is only 55 was fit and healthy but found a lump in her left breast in Dec 2017 she started chemotherpy in March 2018 had reconstructed surgery in Aug 2018 to both breasts and the right breast was tested for cancer and results was clear. She completed her radio theorpy in Oct 2018 n was feeling okay other then her right breast being swalloen and hard and angry red she visited GPS n docs to get told it's the healing process. Anyway 9 weeks post surgery they done a biopsy and found out the cancer was back in the right breast this time tho and she had to start the process all over again. So she started her chemotherpy on my son's 7th birthday 3 weeks ago and ever since then she has been having bad headaches and was suffering constipation. She's recently gone down hill very quickly and I had to take her hospital 5 days ago as she colapesed and had a small seziure. She's now at hospital and it feels like her condition is getting worse she's got no energy at all and practacly bed bound pain is ranging from her head back to her right breast and she's hardly eating or drinking and started seeing things and people and stuff that are not there I have been demanding an MRI since she first got admitted but only getting told it's weekend and new year so no 1 there to do them the nurses have just been dosing her up on morphine and if it hasn't been for me and my sister she wudnt of even had a wash. They can't get no bloods from her as they can only use 1 arm due to removal of lymth nodes and she has poor access am just really worried and scared and am getting no answers of anyone at the hospital except wait till tomoz but am so so scared and so is my mum any help or other people with a sort of same experience to give advice would help Thank you.


  • SunshinedaffSunshinedaff Posts: 1,342 ✭✭✭✭✭
    Hi @Butterfly88,

    It sounds as if your mum (and you) has been through an extremely tough year, and now to have to start again with new treatment. I am so sorry, my heart does go out to you both. Your mum is the same age as me, I was diagnosed with breast cancer three years ago. Some of the things you have said I can identify with. I had chemo, a mastectomy, then radiotherapy. With regards to the chemo, it is not unusual to have headaches or constipation (there are many more side-effects). I don't know if seizures are a possible side-effect though. Is your mum in a chemo/oncology ward where she can have specialist care? I would hope the oncologist will arrange mri/CT scans( as it went to the right breast, they may want to check if anywhere else, the CT scan would do this).  Especially as your mum has deteriorated suddenly. Taking bloods is tricky especially as cancer affected both sides, but the nurses should know of an alternative site. How is the chemo administered? 
    I hope tomorrow you do get to speak to the oncologist, and things get moving to help your mum.
    Please keep in touch, thinking of you.

    Lou x
  • Butterfly88Butterfly88 Posts: 4
    Hi sunshinedaff,
    Thank you for your reply and your compassion we have managed to get a little bit further today and mum has now had bloods and her MRI done her oncologist are also involved now just waiting on results and to get her moved ward but I feel a lot happier now things are actually getting done to find out the issue we just had to wait till after holidays which is no excuse but anit really the NHS fault I blame the government but don't really want to get into politics be here all day I just wanted to replay and thankyou for your advice and support I wish you all the best for the new year.  
  • SunshinedaffSunshinedaff Posts: 1,342 ✭✭✭✭✭
    Hi @Butterfly88

    Thank you for your reply, I was thinking about you earlier.

    It is good to hear that your mum is finally being seen by the dr's and oncologist, I can understand how stressful the last week or so has been for your mum and yourself. Hopefully, now, things will move quickly as necessary and I hope your mum begins to feel better than she has done very soon. I hope you are able to find some rest as well to recoup some strength, it's tough on those caring and looking after loved ones. Best wishes.

    Lou x
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