Prostate cancer and secondary bone tumor to spine

My dad is 76 and has had prostate cancer for 10 years he has been on hormone theraphy and 3 monthly injection. Of late complained of back pain and following further visit to consultant the hormone theraphy no longer working. He is now on 5 days of radiotherapy to deal with the pain and then may have start chemo. So worried as he lost weight and appetite not great.

«1

Comments

  • Sbuzz_66Sbuzz_66 Posts: 19

    Hiw successful will radiotheraphy be for this to help him 😔

  • RobertARobertA Posts: 704 ✭✭✭✭

    Hi there @Sbuzz_66

    I am 74 and I have an aggressive prostate cancer and like your Dad, I am also on hormone therapy administered through 3 monthly injections. I have been on the therapy for three years and I have also had radiotherapy aimed at my prostate, seminal vesicles and a couple of lymph nodes. From the outset, I was advised that the treatment is not curative and that it would only be effective for a period ranging from a few months to a few years. I am fortunate inasmuch as it is still working for me.

    A friend of mine who, like your Dad has bone tumours deriving from prostate cancer, logged on to Cancer Research UK and found a clinical trial for which he was accepted. The trial included a series of radiotherapy treatments which successfully shrank his tumours taking some pressure from his spine and reducing his pain. That was his experience, though of course, I am not qualified to give advice. I can suggest though, that you might contact Prostate Cancer UK 0800 074 8383. They are amazing - so helpful and they also provide a range of information and support so you can choose the services that work for you. All of their services are open to men, their family and their friends.

    I am pleased that you have contacted us. This is a very friendly and supportive group and you are very welcome. I do hope that you will keep in touch and let us know how you get on.

    Cheers

    Rob

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you for reply Rob its appreciated. x we just worried the hormone theraphy is no longer working and what next and chemo was discussed briefly but he is in so much pain it's heart breaking as we feel helpless x he has a loss of appetite and looks drawn probably from worry x day 3 of 5 day and we wondering how quick you see a difference days/weeks x

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66

    Hello again.

    I am so sorry to hear that your Dad is in such pain. It must be very distressing for your family.

    I cannot really say how long it takes for the radiotherapy to bring relief as I was not treated for bone tumours and I can only suggest that you press the consultant for more information.

    Our local urologist here in Jersey told our local Prostate group of a drug called Abiterone Acetate which is prescribed in conjunction with prednisone and which he said can be effective when the traditional androgen deprivation treatment (ADT) stops working. It is available here, but it may not be relevant for your Dad.

    I am sorry that I cannot be more helpful as I am not yet in your Dad's situation and I am not qualified to give medical advice. I do think you should ring Prostate Cancer UK - they are so kind and you have nothing to lose by doing so.

    I really do hope that the radiotherapy brings some relief and I wish for you the very vert best possible outcome.

    Kindest regards

    Rob x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you so much I will keep you updated.

  • SunshinedaffSunshinedaff Posts: 847 ✭✭✭✭✭

    @Sbuzz_66

    Hi,

    Just wanted to welcome you here, I am glad you have found us, I am so sorry to hear about your Dad and to hear how much he is suffering from the pain. It is brilliant you have already chatted with Rob, who being in a similar position to your Dad has so much insight from his own experience. I hope that you are able to get some helpful advice from the Prostate Cancer UK group, that will prove beneficial for your Dad. I am sure you have probably done this already, but if not, mentioning the pain to your Dad's oncologist/Drs is important, there maybe a stronger pain med that he can have which may help to get on top of it.

    I understand how hard it is for family and loved ones to see their loved ones suffering and to feel helpless in being able to change anything for the better. The other people who may be able to help and support you are the Macmillan Cancer Support Group, they provide support for the whole family, not just the cancer patient. Of course you are very welcome here, and there are many others who are also supporting loved ones through cancer. Having a place to come and chat without worrying about what you say is a good thing. You will find a lot of understanding here.

    Although I have had chemo and radiotherapy from when I was treated for breast cancer, I don't have any knowledge as to their effects on prostate cancer. I really hope your Dad begins to see a difference and even if only small improvements very soon.

    Lou x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you Macmillian care I coming to visit my dad on Monday.

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66 @Sunshine15

    Hi

    Yes, Lou, I forgot to mention MacMillan. How silly - I am working with them this afternoon too. They have specialists in managing pain and symptoms and I do hope that they can help your Dad Sbuzz.

    Rob x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Dad had his 4th sessoon today of radiotherapy and has been told he will see some effect with in 7/10 days. And full effect could take up to 6 weeks. He must see consultant re alternative pain killer. He also was advised it will become worse before it becomes better. So at least now we know what to expect. As nothing really explained until today. Thank you for the advice you have both given x

  • SunshinedaffSunshinedaff Posts: 847 ✭✭✭✭✭

    @Sbuzz_66

    I am glad to hear your Dad was given some more information, I am surprised he wasn't given a detailed explanation prior to starting radiotherapy. I think that is usually what is meant to happen. At least now he knows a little of what to expect in the next few weeks. The tiredness will begin to kick in, and fatigue will be cumulative as the treatment continues and after it has finished.

    With regards to the pain meds, if your Dad doesn't have an appointment scheduled with his oncologist, I would suggest putting a call into the hospital to ask them to put you through to the consultant's secretary and let them know you need some help with pain meds. I have done this before myself when I have had to either speak to my oncologist or make an appointment. The secretaries are usually very nice, especially oncology ones.

    I hope your Dad is able to get that sorted soon, and also I hope the visit from the Macmillan nurses goes well for you too.

    Lou x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you yes he is seeing his cancer consultant tomorrow after his last session and my sister attending along side him and my mom. I will keep you posted and thank you.

  • Sbuzz_66Sbuzz_66 Posts: 19

    Hello my dad had his meeting with consultant and he does not feel chemo is right choice now as he can see a decline in him since radiotherapy and will review him again in 6 weeks and re do his blood count. He advised them that it not agreesicve at the moment. Us as family are really worried they may decline chemo 😔. Time will tell. My dad feels there is going to no hope,

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66 @Sunshinedaff

    Hi

    Thank you for keeping in touch.

    I am not too surprised that the Consultant has found a decline in your Dad at this time. As Lou mentioned earlier, the effects of radiotherapy tend to be cumulative and you will recall that the Consultant told you that his pain would get worse before getting better. It is at least encouraging to hear that the cancer is not aggressive at the moment and hopefully your Dad will get stronger and able to handle the chemo in six weeks time. Do you know what his Gleason score is?

    It is a really tough time for your family and for your Dad, but I am sure you will spend the next few weeks helping him to get his strength up so that he will be able to cope with the chemo.

    Rob

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you Rob


    Nowfigures he gave him he had gone from, 6 to 16 from his last blood test and that's how they coukd tell hormone theraphy has now stop working.

    However he asked my dad keep having 3 monthly injections but did not explain why.?

  • Sbuzz_66Sbuzz_66 Posts: 19

    Coukd be psa score but am unsure

  • Sbuzz_66Sbuzz_66 Posts: 19

    Coukd be psa score but am unsure

  • RobertARobertA Posts: 704 ✭✭✭✭

    Yes, sounds like psa to me. I think it is usual to keep on with the injections. Even if they are not as effective as before, they may still be slowing the psa rise to some extent over the next six weeks until the next review.

    Rob

  • Sbuzz_66Sbuzz_66 Posts: 19

    OK thank again Rob. You do bring some ease to all these questions x

  • SunshinedaffSunshinedaff Posts: 847 ✭✭✭✭✭
    edited June 17

    @Sbuzz_66

    Thanks so much for taking the time to let us know how your Dad's appointment went. As Rob has mentioned it's good the consultant doesn't think it is aggressive at the moment. Did the consultant give your dad some stronger pain meds to help?

    As for chemo, continue to be positive around your dad, sometimes if you are persistent about things with drs they will change a course of action. Do not be worried about them refusing chemo, they will want to give your dad the best chance possible. They will listen to your dad and how he feels about things too. He will need to get stronger after radiotherapy before having chemo. Encourage him to not give up hope. I know how hard it must be for you watching and seeing your dad suffering, and feeling like you can't help or fix it. You know we are here for you too, don't give up, try and stay positive and strong.

    Thinking of you

    Lou x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Thank you x the consultant never gave him anything else as my mom said he had tried ibrobrufen rapid and this eased it but not enough he said keep on wuth that. And speak to Macmillian. Which I an surprised at.

  • SunshinedaffSunshinedaff Posts: 847 ✭✭✭✭✭

    @Sbuzz_66

    I am surprised by that too. If the ibuprofen stops being effective, perhaps telling the Macmillan nurse too, but really the dr should be monitoring it. I do know from my own experience it is important to take them regularly, round the clock if necessary, being proactive in stopping the pain rather than reacting to the pain. I expect your mum and dad are doing that anyway.

    Lou x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Well that's we thougt. My mom is not to pleased with this consultant and they have seen him a couple times and not as they say very good manner. I was going to call the secretary and ask for May be a different one. He did direct them to Macmillian but surely is his job first and for most. Regards Sharon

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66

    Hi Sharon

    I have a similar experience inasmuch as I have found that the medical people here are very good at keeping me alive but not so hot at talking about the physical and mental side effects that a cancer diagnosis always brings. I always take my wife when we visit the consultant because she is persistent and good at asking questions and remembers things which I forget.

    MacMillan Cancer Support have been brilliant for me and saw me through a very tough time. I think you mentioned that they are seeing your Dad today and I hope that they will be able to help with pain relief and emotional support. The effects of a cancer diagnosis on family carers can be overlooked too and I trust that your Mum, yourself and your sister will accept any help they may offer.

    Rob x

  • 4Gretton4Gretton Posts: 29 ✭✭

    @Sbuzz_66

    Hi Sharon and welcome . I’ve just been reading the messages above. I’m so pleased that @Sunshinedaff and @RobertA have made contact with you, they talk a lot of sense and are very supportive. This is not my territory (female) though my 91 year old father has been on the 3monthly injections for many years. I do however have experience of pain and the way specialists whilst wonderful in their specific field seem to overlook this. My GP put me in touch with my local hospice ( of which I’ve spoken about a lot today as my kids have been fundraising for them ) The doctor there said my pain wasn’t being managed correctly and prescribed me slow release morphine with liquid morphine top ups as needed . Maybe there is a similar hospice near your dad that could help with this or as Rob suggested Macmillan. The last thing he needs whilst all this chemo/radiation is going on is pain and it would be good to get on top of this .

    Maybe next time he sees his specialist he could ask to be referred to a pain clinic if there is one in your area. We have one nearby in Liverpool, I’m sure there are others .

    Good luck with it all. Keep us posted on how things are going

    Best wishes

  • RobertARobertA Posts: 704 ✭✭✭✭

    @4Gretton

    That is really good advice.

    Apart from Hospice, the question of Palliative care has been mentioned before in our group and it is often confused with end of life care, but it is for any patient with a chronic illness who is experiencing a decreased quality of life because of symptoms related to their illness or treatment.

    I am interested to hear that your father has been on the injections for many years. How amazing that the treatment is still effective after so long. Gives me a boost to hear that.

    Rob x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Hi my dad was diagnosedwith protate cancer july 2009. In 2016 it had spread to the spine. He has been on inhections, steriods and hormone tabs. Only in march this year has tbe pain started in back. After us referring to docs and bllood count really low and not increasing they did tbink it was muscular. Approx 3 years he has continued with hormone theraphy and has lived good quality life Now this has stopped working. They have said the 3monthly injection to contine.

    Dad today is a lot pain still and radiotheraphy sessions stopped last thursday but were told wont see any effect as yet. Dr has prescribed tramadol as the morphine sulphate not had much effect so has been toldto take the 2. He fines it at ease when lying down on his side. It only with movement of sitting getting out of bed awful. Been emotiinal time for us all and today was not nice to see as he was in tears. Will see how we go over the next few days x thank you all so much x

  • LouiseJLouiseJ Posts: 361 mod

    @Sbuzz_66

    Hi Sharon,

    I am so sorry to hear today has been really difficult for your dad, and also for you all seeing him in such pain. If in the next few days there is still little improvement on the pain reduction, don't hesitate to contact his dr. Keep on at them, as there may be others he can try.

    Thinking of you all,

    🤗

    Lou xx

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66

    Dear Sharon,

    So sorry to hear that your Dad is still experiencing so much pain. It must be a traumatic experience for all of you. I do hope that the effects of the radiotherapy treatment start to take effect very soon.

    You are all in my thoughts.

    Rob x

  • Sbuzz_66Sbuzz_66 Posts: 19

    Me to rob i tgink we just expected it straight away and consultant at the cancer unit at the QE never set any expectatiobs 😔 keep praying he was much the same today but soent most of his day in bed as he has no oain when lying in bed only when getting and mobile. X hope our 🙏 are answered very soon

  • RobertARobertA Posts: 704 ✭✭✭✭

    @Sbuzz_66

    Me too 🙏

Sign In or Register to comment.