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Secondary breast cancer

Hi to everyone reading😁😁😁

I'm 47 and last October was, devastated to be diagnosed with secondary breast cancer. I'm coping really well with treatment had my first CT scan around 7 weeks ago and cancer as shrunk significantly (lungs and spine).

I wondered if anyone on here have similar diagnosis as myself and any inspiring stories to tell πŸ’œπŸ’œπŸ’œπŸ’œ

Β«1

Answers

  • SunshinedaffSunshinedaff ✭✭✭✭ Posts: 773 ✭✭✭✭

    @Grimmer69

    Hi,

    Welcome to the community, I hope you will get to know us soon, everyone is very friendly, you will find a lot of support here to help you through this really tough time.

    I am so sorry to hear of your secondary diagnosis, that must truly have been a terrible shock for you, but I am really pleased that the cancer is responding to the treatment. Is that chemo you are having?

    I was diagnosed with breast cancer in 2015, and thankfully my treatment was successful. I had chemo, a mastectomy and radiotherapy which removed the cancer. I did have a lot of post-treatment side-effects that have taken a long time to improve. I have had a lot of help from my oncologist who has been brilliant in getting me seen by others to try and help with things.

    Things are slowly improving but to be honest it hasn't really stopped me, just slowed me down! haha! Sometimes I am like an old woman, and I'm not! Well not according to the medical professionals, who all tell me I am a young person! If they say it, it must be true!🀣

    Since my cancer diagnosis I was just determined not to go the way of my family (sister, mum and dad), I am very positive and refuse to allow cancer to define me, or dictate how my life was going to be. It is difficult, it hasn't been easy but I am so thankful for being given a chance to live again, when it could so easily have gone a different way. I now try and live my life in the best way possible, my priorities have changed. Life is just too short and when cancer tries to come and steal it from me, I intend to give it what for. Being part of this community does that, it is a real privilege to meet others and to be able to support, encourage, cry and laugh with everyone wherever they are on the cancer road.

    If you'd like to chat just join in with any conversation or start your own. We also have an off-topic category and you can chat about anything there. Even though you don't have a choice currently living with cancer, sometimes it's good to not have it in your face all the time.

    I look forward to chatting with you soon, keep in touch, let us know how you are getting on.

    Lou x

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Thankyou for your response I love love love your attitude I'm very much in the same mind sett cancer isn't going to stop me I'm living with cancer NOT dying from it. As they say where's there's life there's hope. I'm currently on immunotherapy ibrance and letroloz plus two implants every month zoledex to pute in the menopause and another to strengthen my bones sorry can't remember the name and pretty sure I can't spell it!!!!!

    Good to know you are doing so well and are recovering your nasty treatment. I was a rare case diagnosed straight to secondaries at only 46 so never had a chance to fight the bugger off in the first place but I'm fit well and ready to take on the world πŸ‘πŸ‘πŸ‘πŸ‘xxxx

  • SunshinedaffSunshinedaff ✭✭✭✭ Posts: 773 ✭✭✭✭

    Hi @Grimmer69

    Thank you for your reply, I am so very pleased you have the same fighting spirit within you. I do believe it can really make a difference, so you hang on in there. I am with you! You know you will get the support here when the going gets tough. I take Letrozole, but I don't know the others. I am so sorry the diagnosis was so advanced already and you are very young! I know that because they tell me I am, and I am much older than you! hahaπŸ˜„.

    I hope you have a peaceful evening,

    Take care and chat soon,

    Lou x

  • RobertARobertA ✭✭✭✭ Posts: 603 ✭✭✭✭
    edited April 16

    Hi @Grimmer69

    So sorry to hear about your secondary breast cancer, but what a great positive approach you have. That is fantastic and I am sure it makes a difference.

    My cancer is different, but I have had amazing support from all of the lovely folks who write in our Community. It is full of courageous, caring and funny people who will support you when you are having a bad day and who will celebrate the good ones with you, You are very welcome here and I hope you will keep in touch.

    Rob x

    PS. You and @Sunshinedaff are both just kids. Now where did I put my bus pass? 🀷‍β™‚οΈπŸ€”

  • JokeyJokey ✭ Posts: 10 ✭

    mine was also straight to secondary’s ,on the same cocktail as yourself

    I also. Am trying to live with cancer some days are harder

    can I ask what time of day do you take your tablets

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Hi Jokey sorry your in the same position as myself let's fight this bugger together!!!!!!

    I know some days are so hard to bear I just hold it all in which I know I shouldn't really but I don't like upsetting anyone(what else can you do) It's just so bloody hard to get your head around it all but mostly I get on and take it one day at a time.

    When we're you diagnosed was it recently???

    I take my tablets on a morning around 10ish not had many problems at all really joints are abit stiff and achey getting up and down but that's about ot

    Hope you are well and are coping as best as you can πŸ’œπŸ’œπŸ’œπŸ’œπŸ’œ

  • LouiseJLouiseJ mod Posts: 330 mod

    Hi @Grimmer69

    I am sorry some days are so very hard for you, you can ALWAYS come on here and pour out whatever is on your heart and mind. At least that way you are not bottling it up or holding it all in constantly. It is very difficult around family and friends sometimes, this is where the community here is available for you. Lots of lovely people here who understand and are good at listening. (I am @sunshinedaff too.)

    Anytime you want a chat, or just to vent, moan, laugh, or cry, here for you.

    πŸ€—

    Lou xx

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Thankyou so very much your so right it really is good to have support.

    I find it's the not knowing that's the hardest thing to handle and the fact I never ever thought about death and dying. I find keeping busy helps and trying to stayed focused and positive I'm 100 % ready for a fight I'm determined to WIN 😁😁😁😁. I like having outings and holidays booked and things to look forward to. Currently in Alcudia with my son but it's bloody raining whatever did I do to this deserve this I'm thinking please give me a break!!!!!! But hey ho I'm not at home washing cooking and cleaning.




    Xxxx

  • LouiseJLouiseJ mod Posts: 330 mod

    @Grimmer69

    Yes, the not knowing is absolutely the hardest part, when we are in that place, that is when our fears can really cause mayhem sending us into very dark depths. It is hard to keep that at bay. I agree with you, having things planned to look forward to is very important and can help, especially on those really difficult days.

    It is raining here too, been doing that all day, I'm sorry you have it with you too. By the way, you didn't do anything wrong (I'm sure you know that really πŸ€—). How long are you there for? The weather is meant to be brightening up, so hopefully you will see some warmer, sunnier days while you are there.

    Thinking of you,

    Lou xx

  • RobertARobertA ✭✭✭✭ Posts: 603 ✭✭✭✭

    @Grimmer69 @LouiseJ

    Hi

    I believe that coping with a cancer diagnosis is always difficult and chatting to others who understand can take a bit of pressure from family and friends who just worry when you tell them how you feel on a bad day. It took me quite a while to fully understand how much my wife had been affected by my diagnosis and I try to stay positive around her. I have found this community so valuable as I can say how I feel knowing I will find support and not be judged.

    It is a great idea to plan outings and holidays. Since cancer struck, I find that I think more and more about what really matters to me and try not to waste a day.

    Rob x

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Rob that's just how I feel I just hate thinking about how much my husband and son must be hurting so I stay strong in front of them (mostly). I do have a cry with my hubby when I'm having a really bad day but I never would infront of my son(he's 24) I think he would probably go into a complete meltdown. I get very angry too and I feel life as been very unfair as I watched my mum die of cancer so I know how my son must be feeling. I'm only 47 it, s so bloody cruel and unfair so I must fight this I want years and years yet I have plans and future holidays.

    I feel like I'm rambling abit now and moaning that's not me really I'm mostly jolly it just does get to you every now and then.

    Susan X

  • RobertARobertA ✭✭✭✭ Posts: 603 ✭✭✭✭

    Hi Susan

    You are not rambling at all, or moaning. This is a good place to say how you feel. I have often done it. .

    Of course it gets to you from time to time. It is really tough to be coping with cancer at your age. I am much older but it was still a shock to be told my cancer was incurable and that I might expect another 5 decent years. That was 2.5 years ago but since then, a new treatment has been approved which could significantly extend that. New treatments are being introduced on a regular basis and I am sure that you will be enjoying holidays for many years to come.

    Rob x

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Wow fantastic news Rob that as made me feel better. I know your right one of the tablets I'm on (ibrance) is one of the new wonder drugs. If I honestly thought I still couldn't be cured but could live a full happy long life I would be very happy with that.

    I hope you are well and enjoying life to the full.

    Also on the plus side Louise J the sun as come out. What is it about blue sky's and sunshine that makes you feel so happy 🌞🌞🌞🌞🌞🌞🌞

    XXXXXX

  • SunshinedaffSunshinedaff ✭✭✭✭ Posts: 773 ✭✭✭✭

    @Grimmer69

    Hi Susan,

    I am so glad the sun appeared for you, I know what you mean, I always feel so much better when I can see the sunshine, if it's warm even better. It is one of the little miracles I had when I was having treatment, every time I had to visit the hospital for whatever reason, the sun shone and the sky was blue, every single time, without fail. It was a real blessing to me.

    Rob is so right, new treatments are being discovered far more often now, medical research is really so much further on than it used to be. You keep planning those trips, you will see them come to pass, you are not moaning, it's good to chat here. It's a safe place. I fully understand holding it together for your son, I did for my daughters, but with my husband sometimes it was very hard for us. I remember sobbing and sobbing before I was even diagnosed, only because I'd lost my sister, mum and dad to cancer, I was so angry that cancer may be in me. (We were on holiday at the time, I just mentioned I thought I should see a dr after to check something out).

    Susan, you can count on me and others I am sure, to fight in your corner with you. I mean it.

    So, for today, enjoy that lovely sunshine, breathe in deeply, feel the warmth on your face, enjoy every moment.

    Lou xx

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Lou thankyou so much may the sun keep shining on us all🌞🌞🌞🌞. That's so lovely about the sun coming out for your treatment it certainly is a tonic.

    I also come from a family where most have been taken by cancer I had a feeling I would get it just didn't expect to get it this young. My hubby as been my absolute rock in alot of ways we are even closer. He always knows what to say and he always says we can handle this.

    So good to talk to all you lovely caring people who knows exactly what we are each going through.

    Xxxxx

  • SunshinedaffSunshinedaff ✭✭✭✭ Posts: 773 ✭✭✭✭

    @Grimmer69

    That's really lovely Susan, this is exactly what this community is for.

    πŸ˜ŠπŸ€—πŸ˜Ž♥️

    Lou xx

  • RobertARobertA ✭✭✭✭ Posts: 603 ✭✭✭✭

    @Grimmer69 @Sunshinedaff

    Lovely to hear that you and your husband are now even closer. Mary and I did have some problems mainly due to hormone treatments which affected me mentally. However, we got through that and we are also closer than ever.

    I just love this community. We are all in it together and that is so comforting and special.

    Rob xx

  • JokeyJokey ✭ Posts: 10 ✭

    Cat scan today

    after 3months of treatment

    slightly nervous , fingers crossed

    hopefully treatment is making a difference

  • LouiseJLouiseJ mod Posts: 330 mod

    Good morning @Jokey 😊

    Ohh, yes, it is always a bit nerve racking going for these scans and then waiting for the results too. I hope it goes well for you, stay positive, will be thinking of you.

    Lou xx

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Fingers crossed for you Jokey always a anxious time I get my results this Monday (2nd Ct scan). Had a little party after my first one as the results were so good and bought a, lovely bottle of champagne.Saved the cork and put the date on I'm hoping to have a huge collection Xxxxxx

    Big huge hugs sending positive vibes πŸ’œπŸ’œπŸ’œπŸ’œ

  • LouiseJLouiseJ mod Posts: 330 mod

    @Grimmer69

    Brilliant idea Susan!! πŸ˜„πŸΎ

    Lou xx

  • JokeyJokey ✭ Posts: 10 ✭

    Thankyou for your kind words

    can i ask how long you ct scan was

    I am sure she said 4 hours but could be wrong

    probably said an hour !

  • LouiseJLouiseJ mod Posts: 330 mod

    Mine was about an hour, I had to drink loads of water before hand, always a problem for me!

    xx

  • JokeyJokey ✭ Posts: 10 ✭

    Like wise I’ve spent most of morning on toilet

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Yeah only about 1 hour drink lots of water oooooo and you will feel like you, ve peed yourself πŸ˜‚πŸ˜‚πŸ˜‚πŸ˜‚. The joys eh xxxx

  • LouiseJLouiseJ mod Posts: 330 mod

    How did it go @Jokey ? Were you able to consume the vast amount of liquid they ask you to? xx

  • JokeyJokey ✭ Posts: 10 ✭

    ok , they gave me another cup full as soon as I got in the room , glad it’s all done

    seeing oncologist on wed for results got everything crossed x

  • Grimmer69Grimmer69 ✭ Posts: 16 ✭

    Wow I have had to wait 3 weeks for mine nearly chewed me fingers off!!!!!

    Glad they aren't prolonging the agony for you love got everything crossed xxxxxx

  • JokeyJokey ✭ Posts: 10 ✭

    Really , that’s a long time I must be fortunate ,I am in on wed for bloods just finished 3 lot of ibrance , also bone strengthening jab due , but they said the results would be with him on wed when I asked today

  • RobertARobertA ✭✭✭✭ Posts: 603 ✭✭✭✭

    @Grimmer69 @Jokey

    Hi Susan and Jokey

    I love your positive good humour. I’ve had the water torture too. Its beer now🍺🍺. Same result Haha.

    Seriously, all the best for Monday Susan and for Wednesday Jokey.

    Rob xx

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