I have had radiotherapy for my third vulva cancer,

And also have had to have reconstructive surgery , I am still very swollen and get severe pain all the time. I had the last operation in October 2017, I am 76 and finding that the healing process is taking a long time and wears me down....is this healing time unusual ? I am also still incontinent and although I am doing my excersises, I seem to be taking a long time to improve my health. The specialists say that I’m healing well, but the pain and swelling really depress me...has anyone else had the same operation and experiences...thank you.

Best Answers

  • RosegardenRosegarden Posts: 4
    Accepted Answer

    Vulva cancer with reconstructive surgery, and radiotherapy.

Answers

  • SunshinedaffSunshinedaff Posts: 742 ✭✭✭✭

    Hello @Rosegarden

    I just wanted to say hi to you, and welcome to the group, you are very welcome here.

    I am very sorry to hear of your diagnosis and all the treatment you have had and that it is such a hard recovery for you too. I can only imagine how painful it must be, I had breast cancer, and so I don't have any advice I can give to help you. It is good that the specialists are pleased with how you are recovering, and it sounds as if you are doing all you can to help yourself. I guess it is going to be a time thing, but I understand that isn't easy.

    Is there anyone you are able to talk to in your local area? Perhaps the hospital have connections to a local group with similar cancers? I would encourage you to mention to your Dr how you are feeling mentally, as depression and anxiety are very common even after cancer has been treated. Sometimes it's only then that everything hits you and can send you spiralling downwards. You are of course very welcome to chat here, since the group has been running there are so many here with various cancers, every one is very friendly and will support you as much as possible.

    It must be very painful to be seated etc I would imagine. Do you have anything to help with that? I do remember after childbirth (many moons ago!) a friend of mine made a spongy circle (wheel) for me to sit on, so I wasn't putting pressure on sensitive areas. Just a thought perhaps something like that may help you?

    I look forward to chatting with you, keep in touch, let us know how things are going,

    Lou x

  • RosegardenRosegarden Posts: 4

    Thankyou for your sympathy and comments, the trouble is that no one in my area has had this so it’s a bit like wandering through a maze until you find the answer. The specialists are doing everything that they can, it’s just that it is taking so long to heal and get rid of the pain and swelling. But, I am an older woman so I suppose I will have to just be patient and wait out the surgery and pain, Thankyou for your help,x.

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