"Surprise" side effects from treatment?

We've heard that it can vary massively depending on your doctor exactly how much information you get about side effects before starting treatment. Lots of people seem to get information on hair loss and other side effects like fatigue and nausea, but there are so many other side effects that can happen.
Have you experienced any side effects that you were not warned about? Maybe we can start to spread more of that useful information to members who are just starting off on their treatment plans...
Have you experienced any side effects that you were not warned about? Maybe we can start to spread more of that useful information to members who are just starting off on their treatment plans...

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My main reason for posting here is the issue of cognitive disorders which I have found very difficult to combat, and I really feel for scribbler and Twicearound in that respect.
I am fortunate that I am retired and it is less important for me but I have real issues with concentration, forgetfulness and sadness. My wife used to get angry with me, but we have had counselling at the wonderful MacMillans and have learned that these changes are not my fault. It has helped us both enormously to understand that.
It seems unbelievable that in a world where depression is now recognised as a genuine illness, that someone can be sacked for a cognitive disorder caused by cancer treatment.
Cancer leaves its mark on anyone who has or has had it and we must get that message across somehow.
Rob
Good to hear from you and welcome to our friendly community. Are you on ADT (androgen deprivation therapy?) The experts told me that without testosterone I would not be able to prevent muscle loss. I decided to try exercise bands to counter this anyway. They are safer to use than weights and I have a little 20 minute routine which I follow four times a week. It has worked pretty well for me and I have actually lost weight and gained some muscle definition over the last twelve months or so.
I am delighted to find another man posting on prostate cancer issues. When I tell people I have it, they nearly always say they know someone who has had it for 15 years and are still happily living their lives. It is a dangerous assumption as some 10 percent of sufferers have an aggressive and fast moving cancer. By the time mine was identified, the cancer had already spread to the surrounding tissues and lymph nodes and it cannot be eradicated, only managed. I would urge any male over 50 to ask their doctor for a PSA blood test and if any ladies are reading this, please ask your other half to do so.
Thanks for posting.
Rob
Here I am spreading the word at the Co-op. Happy in my work.
Rob
Lou x
Rob X
Rob,
Hahaha...yes, up very early...4.30am these days to get eldest to work. Bless her, home from uni, but having to work to save some money. Mind you, just got in from visiting West Quay, and having dinner out, lovely evening.
Lou x
Lincoln, I have never been there. I have realised there are large parts of the UK that I have never ventured to, not unusual I suppose.
We go to West Quay often and Gun Wharf too. I grew up in Sussex, moved to Dorset for Higher Ed, and never moved again. Although now we are near Ringwood, technically Hampshire, but for everything bar the post code, Dorset.
Lou x
Ooh, sounds lovely. Will have to try and arrange to visit when we next get some holiday time. I went to college in Chichester, know it very well, and my daughter is at Winchester uni, so I know that very well now too. Haha. xx
Back in the Stoneage I was offered a great job in Christchurch. Couldn't go because my Mum would not move and I couldn't leave her in Jersey on her own. I love the New Forest though I haven't been for quite a few years now.
My Dad, a true Yorkshireman said that they built the Humber Bridge so that Lincolnshire folk could escape to God's own county. He wanted me to be born in Yorkshire so that I would be eligible to play cricket for them. He needn't have bothered though as Yorkshire showed no interest in my talents whatsoever.
Seriously though, Lincoln sounds lovely. Wouldn't it be great if we could all meet up there for afternoon tea one day.
Rob xx
Hahaha, you make me laugh! Can't believe that your cricketing skills were so unappreciated! 😂.
It is a small world really isn't it, you find people who have connections near you etc.
Meeting up for afternoon tea sounds delighful! Count me in!
I have only passed Jersey on the ferry to France! 🤣. We did stop once and immigration came onboard.. I explained it was nothing to do with me!! 🤣😂😂. Would love to visit one day, my only knowledge of it is from 'Bergerac'! Haha. Ancient, I know!
Well perhaps not, since I was diagnosed every Dr I have seen pointed out I was a young person...get that!! I began to think if the medical professionals think I am young I must be! So I'm going with that theory, plus I have been counting my age backwards for several years now, I am almost 21 again!
Lou x