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LindsayB22LindsayB22 Posts: 33 ✭✭
edited March 2020 in Diagnosis & Appointments
I everyone, I was expecting the results on 13th August from the radiotherapy I had ending in March, but I got a call from the hospital asking me to go in today, as the scan had revealed a lump on my neck. To say I'm scared is an understatement. I was hoping to come out of the hospital singing and dancing on 13th with the word remission ringing in my ears, but I've got my fingers and toes crossed and now don't know what to expect. 

Comments

  • RobertARobertA Posts: 1,273 ✭✭✭✭✭
    @LindsayB22
    Hi Lindsay

    It must have been a shock to get that call from the hospital and of course you are anxious about the lump they have found.
    I am pleased that you have contacted us and I hope that you will let us know how you get on. We are here to support you in any way we can.
    Rob x
  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Rob,

    Thankyou for your kind words. It's good to know there's people around who want to listen and support when these things happen. I'm going to celebrate the one I've zapped and now on a mission to zapping this one. It was a shock but I'm convinced that positive thinking does work - hey I've proved it. Hope you're well.

    Lindsay x

  • SunshinedaffSunshinedaff Posts: 1,435 ✭✭✭✭✭

    @LindsayB22

    Hi Lindsay,

    My thoughts are with you, I can imagine how hard it must be and scary too, especially after you had completed treatment. You know we are here for you, I understand what an anxious time it must be waiting until the 13th.

    Staying positive, and determined is a good thing. You will always find encouragement here to keep going.

    Chat soon,

    Lou xx

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Lou,

    Nice words from you. The 13th was supposed to be results day but got them earlier due to the new monster lurking. I nearly had a few tears but remembered my daughter Kerry was with me, so managed to compose myself.

    I've got some good people around me as well as you amazing friends on here to keep me sane. Thankyou.

    Lindsay x

  • SunshinedaffSunshinedaff Posts: 1,435 ✭✭✭✭✭

    @LindsayB22

    Hi Lindsay,

    Oh bless you, I am sorry, not an easy day for you.

    I am pleased you have a great support network with you. That does help, especially to have the 'right' people around you.

    And then we can bring up the rear! Support on all sides!!

    Hope you are able to have some sleep and peace tonight.

    🤗🤗

    Lou xx

  • RobertARobertA Posts: 1,273 ✭✭✭✭✭

    @LindsayB22

    Hi Lindsay

    Nothing wrong with a few tears and I am sure that Kerry wouldn’t mind. Well, you have zapped one and you can zap another.

    Rob x

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Thankyou Rob. I;m just terrified of having chemo if I have to. I'm a real softie when it comes to treatment


    Lindsay x

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Thankyou Lou. Can't see me getting much sleep tonight although I am tired. I think it's just a case of fear of the unknown if I have to have chemo. Thank god for this group. Goodnight

    Lindsay xx

  • SusanW60SusanW60 Posts: 13

    Hello Lindsay just thought I would put in a good word for chemo which I realise sounds rather strange! I also have a blood cancer multiple myeloma and have had 6 months of chemo followed by a stem cell transplant. I was absolutely horrified to be told I would need chemo as I was not expecting it at all. I can honestly say it was not too bad and the side effects were well managed. It seems that a lot of the newer kinds of chemo are more targeted at the cancer cells and dont cause too much damage to healthy ones. If you do have to have chemo you will get great support from the chemo nurses I am sure. It's the not knowing what is coming next that's the most difficult isn't it? Once you know the plan ahead it will help. Everyone says a day at a time and that really is true. Wishing you the very best. Suex

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Sue, Thankyou for giving me this information on chemo. Yes, it is the not knowing that's probably got me frightened more than anything and you echoed the words of the nurse who took my bloods yesterday. Surprisingly I did manage to get some sleep last night, but as soon as I woke, that horrible feeling in my tummy came to me in a flash. I'm due to get a phone call this afternoon once they've worked out a plan. For now though, I'm going shopping.Have a great day Sue.

    Lindsay xx

  • LouiseJLouiseJ Posts: 789 ✭✭✭✭✭

    @LindsayB22 , @SusanW60

    Hi Lindsay,

    You may have had a phone call already re your treatment, Sue put it so brilliantly about the chemo if that is what is required. It really is one day at a time, and you will be looked after so well through it, monitored closely. If the meds have to be adjusted it is possible.

    I am glad you managed a little sleep last night and I hope today’s shopping helped to keep a little normality going for you.

    Once you know the plan of action, you can set your mind to it, with some help and support you will come through the other side of this.

    Sending a hug 🤗,

    Lou xx

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Lou, As promised the nurse specialist phoned me at 5pm and what she told me brightened my day. At the meeting they had today, they had another look at my scan results and decided that the lump in my neck is lymphoma but low grade, so no biopsy is needed and it's now just a case of watch and wait, as it's not bothering me at all. I'll be having another scan in 3 months time and regular check ups. To say I was buzzing after that phone call is an understatement.

    Yes, Sue's reassuring words about the chemo relaxed me and I'm thankful for that. I'm now celebrating with.....a bottle of water lol.

  • RobertARobertA Posts: 1,273 ✭✭✭✭✭

    @LindsayB22

    Hi Lindsay

    Oh what a relief it is to hear your news. I am so pleased for you.

    Haha,not sure I would feel as if I was celebrating if I was just drinking water, but maybe it would work if I had a slice of carrot cake with it. Just. 🍰😋

    Wonderful, wonderful news.

    Rob x

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Rob, Yes, I know what you mean. I'm not a big drinker but I have had half a can of lager today. I am relieved and although the new monster is lying there, the Drs don't seem overly concerned about it, but regular scans will keep me right. Hope you're having a nice weekend.

    Lindsay x

  • LouiseJLouiseJ Posts: 789 ✭✭✭✭✭

    @LindsayB22

    Hi Lindsay,

    I am so pleased that the phone call , although something to watch, does not require immediate intervention. You must be very relieved, I am sure. And breathe.......

    I do hope this weekend has been brighter for you, and you have more peace about the situation.

    You know there will always be people here who understand what you are going through and how you are feeling.

    Lou xx😊

  • LindsayB22LindsayB22 Posts: 33 ✭✭

    Hi Louise, I have had a great weekend thankyou, as I got the news on Friday at 5pm, just as I was about to have a meal with my friend. It turned out to be a celebratory meal. I was wondering if another bout of radiotherapy would get rid of this lymphoma as well, but there's other questions I need to ask the Dr, so I'll add that one as well. Take care.

    Lindsay xx

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