Got a question re eating after total gastrectomy.
Had op three weeks ago.
Eating still difficult, heartburn and bile reflux painful, even with Gaviscon.
Any advice and experiences gratefully received
It is lovely to 'meet' you, welcome to our friendly community. I hope you will find it a place of support, and encouragement. Everyone here is very friendly and supportive.
Just reading your post I can only imagine what you must have gone through and still enduring.
That must be so hard for you. Were you given a timeline for your recovery by the surgeon?
I don't have any knowledge of this, I would suggest contacting your medical team to let them know if things are not improving as they should be. Three weeks is still very early days I would imagine.
Hopefully someone else may have a similar experience to yourself, where you can find some info.
Please come and chat at any time. I really hope things improve for you very soon.
Good evening @Rolly
I am sorry to hear about your difficulty with eating. I do hope that at least, you are now cancer free.
I have no knowledge of your situation but I am pleased that you have found our friendly and supportive community and perhaps there will be someone who is in a similar position and able to discuss it with you.
I do hope that you will keep in touch and let us know how you get on
I too have had a total stomach removal and am 7 months now since surgery still losing weight but I am told it should level out. The dietary requirements are obvious little often high calorie. I have found that having a good safe routine of what and when I am eating has helped. Expecting to be able to experience eating as before and experimenting was fine and have learned what is ok and what is not. I had stage4 cancer and a T4 tumour which was removed with my stomach and severe chemotherapy before and after worked for me for now. Trying to be positive everyday helps. I hope your eating improves and early days yet it will get better but a slow process. Hope this helps.
Great to hear from you. I am sure that telling us about your experience is helpful and valuable to others in a similar situation.
You have been through an awful lot and I hope that you are now cancer free.
Welcome to our friendly group. I do hope that you will keep in touch.
Thanks for that George. Yes, a long and hard road, but positivity will overcome. Eating is getting easier day by day but do miss tucking in to a Sunday roast...
Stay well fella
Thank you so much for sharing your story which is so helpful for others in the sane situation as yourself.
I can only imagine what you have been through, and are going through adjusting to a different way of life since your surgery and treatment. I am so glad you are finding a way through and you have had success with chemo and surgery. You may not feel like it, but I think you are very brave and courageous. I hope you continue to make good progress in your recovery.
If you'd like to know more, please email [email protected] with any questions or suggestions