The first sign of lung cancer

Today is the start of Lung Cancer Awareness Month. For those with this cancer, what was the first symptom you noticed?
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  • GeorgiaGeorgia Posts: 3
    I went to my Dr as my feet and ankles were very swollen. I had also had pain in my left shoulder blade area but after Investigation it was deemed to be caused by gallbladder ‘sludge.’
  • hessomhessom Posts: 109 Community Admin
    Hi Georgia! Welcome to the Community and thank you for sharing! We often hear about how difficult it can be getting diagnosed. What happened next?
  • GeorgiaGeorgia Posts: 3
    Hi Hessom, my Dr sent me for ECG and chest X-ray. She thought it could be heart related.
    I was called in to see her about 3 days later. Two tumours had shown on my left lung. She told me it was cancer. I had two lung biopsies. Two types of cancer. I had surgery at Guys to remove most of my lung.
    I then had chemotherapy. 4 cycles of Cisplatin and Vinorelbine. I am due to have a CT scan soon, fingers crossed.
  • JulesCJulesC Posts: 2
    I had flu like symptoms quite regularly and I thought it was the pressure of my job. I requested blood tests from my GP but they came back as negative. I developed a cough and went to see my GP when I’d had the cough for 4 weeks. She gave me an X-ray form with the instructions- make an appt if the cough doesn’t go away or gets worse. I was told I was low risk as healthy and lifelong no smoker.
    2 days later I developed shortness of breath so had an X-ray and was told to go to A&E immediately. Various tests and a biopsy later I was told I had SCLC stage 4 non curative with a statistical prognosis of 4-12 months. I received this news on 2 Nov 2016 - 2 years to the day!
    Thankfully my scans are clear and have been for 16 months now. On 3 monthly active monitoring and Zometa but otherwise no drugs!
  • BarbaraBarbara Posts: 9
    I have two nodules on my left lung which will be further investigated in December, fingers crossed it’s nothing but if the scans are not to my Oncologist satisfaction, will need operation. 
    So I must wait.....after surviving anal cancer, and that was very tough hopefully this will not be traumatic.

  • [Deleted User][Deleted User] Posts: 54
    edited November 2018
    JulesC said:
    I had flu like symptoms quite regularly and I thought it was the pressure of my job. I requested blood tests from my GP but they came back as negative. I developed a cough and went to see my GP when I’d had the cough for 4 weeks. She gave me an X-ray form with the instructions- make an appt if the cough doesn’t go away or gets worse. I was told I was low risk as healthy and lifelong no smoker.
    2 days later I developed shortness of breath so had an X-ray and was told to go to A&E immediately. Various tests and a biopsy later I was told I had SCLC stage 4 non curative with a statistical prognosis of 4-12 months. I received this news on 2 Nov 2016 - 2 years to the day!
    Thankfully my scans are clear and have been for 16 months now. On 3 monthly active monitoring and Zometa but no drugs!
    Wow @JulesC it sounds like you had so much testing to get to the stage of diagnosis, good thing you persisted. Congratulations on the clear scans, here's to many more! 😄
  • Barbara said:
    I have two nodules on my left lung which will be further investigated in December, fingers crossed it’s nothing but if the scans are not to my Oncologist satisfaction, will need operation. 
    So I must wait.....after surviving anal cancer, and that was very tough hopefully this will not be traumatic.

    Fingers crossed for you in December @Barbara, it must be scary after already going through it once. 💙
  • JulesCJulesC Posts: 2
    Thanks @emilyrose
    Once I was in the Acute system I received diagnosis and first chemo in 14 days which is exemplary, but partly due to knowing lead consultants as I had previously worked at the hospital. This is way and beyond the RTT targets but it has now become my passion to improve cancer pathways for everyone especially lung cancer which often gets forgotten.
    My nhs Trust has an improving cancer care action group which feeds into the cancer board. I would encourage anyone who is feeling well enough to get involved in patients having a voice in the development and improvement of cancer services. x

  • JulesC said:
    Thanks @emilyrose
    Once I was in the Acute system I received diagnosis and first chemo in 14 days which is exemplary, but partly due to knowing lead consultants as I had previously worked at the hospital. This is way and beyond the RTT targets but it has now become my passion to improve cancer pathways for everyone especially lung cancer which often gets forgotten.
    My nhs Trust has an improving cancer care action group which feeds into the cancer board. I would encourage anyone who is feeling well enough to get involved in patients having a voice in the development and improvement of cancer services. x

    This is so brilliant @JulesC, agree it's so important to have the patient viewpoint heard at every level of services. Having worked in a hospital and been a patient yourself I can imagine your input is invaluable! 
  • Georgia said:
    Hi Hessom, my Dr sent me for ECG and chest X-ray. She thought it could be heart related.
    I was called in to see her about 3 days later. Two tumours had shown on my left lung. She told me it was cancer. I had two lung biopsies. Two types of cancer. I had surgery at Guys to remove most of my lung.
    I then had chemotherapy. 4 cycles of Cisplatin and Vinorelbine. I am due to have a CT scan soon, fingers crossed.
    "sludge" - what a word, @Georgia! 😫 Wishing you all the very best for your CT scan, and hope the side effects of the chemo aren't hitting you too hard. 💙
  • Hi everyone, I just joined this forum and I'm not quite sure how to use it!  I was diagnosed with NSCLC in Feb 2017 after having a little tickly cough for about 6 weeks.  Very similar to Georgia. I saw a paramedic first who said No Problem, but because it went on I saw a GP a month later. The chest Xray showed a 7 cm tumour in the upper lobe of my right lung. It was such a shock. I had a lung biopsy, CT scans, a PET scan and then surgery at Guy's Hospital in April 2017 followed by 3 cycles of carboplatin and vinorelbine.  It should have been 4 cycles, but my oncologist cancelled the last one because I got neutropenic sepsis (Aug 2017).  Since then I've had two clear CT scans in Nov last year and May this year, and feel very very lucky!  My next scan will be on 12 Nov.  I've started coughing again though, so crossing fingers very hard!!  Good luck for your scan Georgia!   
  • cosiecosie Posts: 27 ✭✭
    Hi @pamelamorrison - welcome! I just joined yesterday and seems there are some lovely people on here :) So happy for you you have had two clear scans this year. Really hope things go well on the 12 Nov. Please let us know. XX
  • Thank you Cosie - that's very kind of you.  I've been a member of the LiveBetterWith Facebook group for quite a while and that is lovely - everyone so friendly - hoping that this forum will be similar.  Thank you for your good wishes, and hope to hear more from other members here, including you :) 
  • hessomhessom Posts: 109 Community Admin
    edited November 2018
    Hi everyone, I just joined this forum and I'm not quite sure how to use it!  I was diagnosed with NSCLC in Feb 2017 after having a little tickly cough for about 6 weeks.  Very similar to Georgia. I saw a paramedic first who said No Problem, but because it went on I saw a GP a month later. The chest Xray showed a 7 cm tumour in the upper lobe of my right lung. It was such a shock. I had a lung biopsy, CT scans, a PET scan and then surgery at Guy's Hospital in April 2017 followed by 3 cycles of carboplatin and vinorelbine.  It should have been 4 cycles, but my oncologist cancelled the last one because I got neutropenic sepsis (Aug 2017).  Since then I've had two clear CT scans in Nov last year and May this year, and feel very very lucky!  My next scan will be on 12 Nov.  I've started coughing again though, so crossing fingers very hard!!  Good luck for your scan Georgia!   
    Hi Pamela, Welcome!

    I'm really sorry to hear that you first went through a misdiagnosis but great to hear that you've had clear CT scans since last year. We all wish you the best of luck for November the 12th and will be thinking of you! Please do let us know how it goes!

    We hope you find the the new Community really easy to use. In short, we have a few simple categories for discussion (treatments and side effects, caring for a loved one, whats on your mind today and work and cancer). This is just to help organise the discussions a little. You can use the big blue "New Discussion" button anywhere to create a new thread and get people talking :)

    We have a welcome thread which you can check out and introduce yourself :) (https://community.livebetterwith.com/cancer/discussion/63/hello-and-welcome#latest)
  • BarbaraBarbara Posts: 9
    emilyrose said:
    Barbara said:
    I have two nodules on my left lung which will be further investigated in December, fingers crossed it’s nothing but if the scans are not to my Oncologist satisfaction, will need operation. 
    So I must wait.....after surviving anal cancer, and that was very tough hopefully this will not be traumatic.

    Fingers crossed for you in December @Barbara, it must be scary after already going through it once. 💙
    Thank you, I am sure it will be fine, so nice to share this with everyone 😊😊
  • GeorgiaGeorgia Posts: 3
    Hi everyone, I just joined this forum and I'm not quite sure how to use it!  I was diagnosed with NSCLC in Feb 2017 after having a little tickly cough for about 6 weeks.  Very similar to Georgia. I saw a paramedic first who said No Problem, but because it went on I saw a GP a month later. The chest Xray showed a 7 cm tumour in the upper lobe of my right lung. It was such a shock. I had a lung biopsy, CT scans, a PET scan and then surgery at Guy's Hospital in April 2017 followed by 3 cycles of carboplatin and vinorelbine.  It should have been 4 cycles, but my oncologist cancelled the last one because I got neutropenic sepsis (Aug 2017).  Since then I've had two clear CT scans in Nov last year and May this year, and feel very very lucky!  My next scan will be on 12 Nov.  I've started coughing again though, so crossing fingers very hard!!  Good luck for your scan Georgia!   
    Hi pamelamorrison, Thank you for your good wishes. I wish you good luck too. I haven’t an appointment yet, just going on what the Respiratory Consultant said. He indicated a scan in 6 months and that brings it to this month.
    I had wonderful in Guys. My chemotherapy experience regarding care was abysmal. Advised to complain by a Senior Medic. Not pleasant when you want to put it all behind you.
    I saw my Oncologist shortly after finishing chemotherapy April 2016. Last saw Respiratory Consultant re COPD and lesion on right lung. 
    I regard myself as lucky as I’ve come to realise that so often late diagnosis rules out surgery.
    Anyway the best of luck to you!
  • JoolzbuntJoolzbunt Posts: 1
    I had a cough which wouldn't go away. Went to the doctors and was given antibiotics about 3 times, a x-ray which they said was fine. I was due to go back to doctors but was rushed to hospital with pneumonia. I then underwent many more tests before I was diagnosed with stage 4 about 2 months later. Apart from the annoying cough, felt well up until I had pneaumonia and went down hill pretty quick after that. I've got an amazing oncologist and am in partial remission and currently stable. It's incurable so it will come back but am thankful for every extra day I get with my children.
  • hessomhessom Posts: 109 Community Admin
    Georgia said:
    Hi everyone, I just joined this forum and I'm not quite sure how to use it!  I was diagnosed with NSCLC in Feb 2017 after having a little tickly cough for about 6 weeks.  Very similar to Georgia. I saw a paramedic first who said No Problem, but because it went on I saw a GP a month later. The chest Xray showed a 7 cm tumour in the upper lobe of my right lung. It was such a shock. I had a lung biopsy, CT scans, a PET scan and then surgery at Guy's Hospital in April 2017 followed by 3 cycles of carboplatin and vinorelbine.  It should have been 4 cycles, but my oncologist cancelled the last one because I got neutropenic sepsis (Aug 2017).  Since then I've had two clear CT scans in Nov last year and May this year, and feel very very lucky!  My next scan will be on 12 Nov.  I've started coughing again though, so crossing fingers very hard!!  Good luck for your scan Georgia!   
    Hi pamelamorrison, Thank you for your good wishes. I wish you good luck too. I haven’t an appointment yet, just going on what the Respiratory Consultant said. He indicated a scan in 6 months and that brings it to this month.
    I had wonderful in Guys. My chemotherapy experience regarding care was abysmal. Advised to complain by a Senior Medic. Not pleasant when you want to put it all behind you.
    I saw my Oncologist shortly after finishing chemotherapy April 2016. Last saw Respiratory Consultant re COPD and lesion on right lung. 
    I regard myself as lucky as I’ve come to realise that so often late diagnosis rules out surgery.
    Anyway the best of luck to you!
    Hi Georgia, when is your CT scan scheduled? We often hear about the great work being done by Guys & St. Thomas. Best of luck!
  • hessomhessom Posts: 109 Community Admin
    Joolzbunt said:
    I had a cough which wouldn't go away. Went to the doctors and was given antibiotics about 3 times, a x-ray which they said was fine. I was due to go back to doctors but was rushed to hospital with pneumonia. I then underwent many more tests before I was diagnosed with stage 4 about 2 months later. Apart from the annoying cough, felt well up until I had pneaumonia and went down hill pretty quick after that. I've got an amazing oncologist and am in partial remission and currently stable. It's incurable so it will come back but am thankful for every extra day I get with my children.
    Hi @Joolzbunt welcome to the Community! That sounds like a really tough few months, but good to hear that you're in partial remission and I hope you and your family get to enjoy a wonderful Christmas :)
  • Hi Georgia,  I just had my 18 month CT scan yesterday, and I'm wondering when yours is and if it has been booked yet.  I'm sorry to hear that you had such a difficult chemo journey.  But glad that is behind you now.  Best wishes to you!  
  • Joolzbunt, yes, for sure, every day is precious <3   Take care. 
  • cosiecosie Posts: 27 ✭✭
    @pamelamorrison I hope your scan went ok on Tuesday? XX
  • Cosie, thank you yes - I had the scan at a different hospital this time - still coughing! - so still crossing fingers.  In the meantime I had a chest Xray, which has turned out to be clear.  My appointment with the respiraatory specialist is due on 18 Dec.  Can't wait!!! :)   Hoping all is well with you?? 
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