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Lung cancer

CHRISRAFFCHRISRAFF Posts: 1

Hi my name is Chris

i was diagnosed with non small cell lung cancer the week before Christmas. As you can imagine my whole world fell apart at that moment. I had a biopsy and it showed that I have quite a rare form of cancer. It is the L858R EGFR mutation.

Before I was diagnosed I developed a cough which was thought to be pneumonia. I also had /have a horrible taste in my mouth, it has put me off eating and drinking as everything tastes vile. Has anyone experienced this taste etc and can suggest anything to help. Thanks Chris.

Comments

  • SunshinedaffSunshinedaff Posts: 1,410 ✭✭✭✭✭

    @Chris

    Hi Chris,

    I am sorry to hear of your recent diagnosis. I can fully understand how shocking and devastating this news is. Even more so for you right on Christmas. How are you doing now? If it was similar to myself, it was like being in the middle of a whirlwind, my feet never touched the ground. Everything moved so fast. To be honest I didn’t really have time to think and process emotions, thoughts etc at the time, all of that happened after my treatment was over.

    Where are you in your treatment?

    My taste was affected during chemo months, everything tasted weird. Somethings I found intolerable, like coffee and tea. Sometimes I would want to eat or drink something but my tastebuds said differently!

    I would try and sip diluted fruit juice in the morning, although at times even that was hard. I heard on here that frozen pineapple icecubes may help. Some have said ice lollies were a great help.

    It is a bit trial and error really, I was able to cope with toast and marmite, the strong taste helped to stop the metallic taste.

    You are very welcome here, I hope you find it a place of support and help. Everyone is very friendly, knowing there are others here who understand, even if a different cancer, is great.

    Keep in touch,

    Lou x

  • bullcowbullcow Posts: 7

    Hi Chris,

    I heard lemon head candies help.

  • GlendaGlenda Posts: 1

    Hi Chris,

    I was diagnosed with non small cell lung cancer in January 2020. They said It was stage IV because it had metastasized to the fluid around my lung. At first I didn’t think the treatment was going to be too bad because the doctors (one for chemo and the other for radiation) started me out with light chemo one day a week and radiation five days. I sailed through that, kept my hair...hey I got this!! Well after that was complete, my chemo doctor said we now needed to treat the rest of the body because if it metastasized to the fluid, it could go elsewhere. I have now started a treatment of strong, medium chemo as well as immunology. This one is not a piece of cake. My hair is coming out every time I take a shower or try to fix what’s left. My tastebuds are wacky. I think I’m hungry for something but as soon as I taste it, I find that I’m not.

    it was great talking to you, Chris, and thank you for the pineapple tip. I’m going to give that a try. I’ve found that Sprite tastes pretty god on my bad days.

    Glenda

  • Kenzie123Kenzie123 Posts: 7

    Hi, I was diagnosed with lung cancer Marchk2019, I had upper left lobectomy. Have been OK, apart from pain in between my shoulder blades, taking gabapentin but not helping. Could this be a recurrence of cancer, thank you.

  • SunshinedaffSunshinedaff Posts: 1,410 ✭✭✭✭✭

    @LizzyB73

    Good morning,

    I am sorry to hear you are experiencing this pain. I have tagged Liz our oncology specialist nurse in this chat as she may have more insight or information. Hope this is ok Liz 😊.

    I would suggest you contact your own oncologists though and get it checked out. I appreciate things are very tricky etc seeing drs at the moment. But it is still important to let them know what you are experiencing, they can then decide any next steps necessary.

    It is good to hear things have been going well until this pain began. I hope you are able to get some answers soon.

    Take care,

    Lou x

  • Kenzie123Kenzie123 Posts: 7

    Hi Lou, I have spoken to my GP and she has contacted my consultant, but because my scan was clear in November he doesn't think it could be anything serious, but I am in constant pain and getting really worried that my cancer is back, thanks for getting back to me x

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    Hi @Kenzie123

    How is the pain today. Sorry I am a bit slow in replying as I missed this one to start with.

    Let me know if you need a chat


    Liz 🌻

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
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