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Chemotherapy again!


I had to restart chemotherapy yesterday, just Gemcitabine, for several weeks. I had finished a course on August 1st. last year, which involved that drug, tablets which I didn't get on with and stopped, and Fulforinox which had been stopped early as too severe (six months"tidy-up" after having a Whipple's Procedure in October 2108, for head of pancreas tumour). I had been quite well since then, no loss of weight and eating okay. My oncologist was keeping an eye on me, as there was a shadow behind the operation site, which didn't change, but I have been getting more and more lower back and right side aches, under the ribs. I was beginning to take more painkillers for this. I had a PET scan about 3 weeks ago, which did show some tumour there, but it had not spread, thank goodness. I cannot have another operation as it's near some major blood vessels, so I'm back on chemo to try and stop it. I have been told I'm a possible candidate for something called Cyber-Knife, so I have to wait and see what the outcome is. Feeling fed up , what with all this and the virus causing me to come under the vulnerable notice. I feel as if I've been in lock down since 2018, and was just beginning to hope to get out and about more!! We were hoping to move house too, but thankfully hadn't started the process, so that won't happen now.

I hardly see anyone but the hospital staff and my husband (poor man!), as my scientist son is in America and can't fly over. My scientist daughter is very busy working on validating this virus as well as her other work! I'm glad to be still here though, but when I'm going through the darkest times, I wonder why!!

I wish I could get a hair trim too, so will resemble a shaggy sheepdog before all this ends,(I didn't lose my hair last time, but who knows), but I'm probably not the only one.

Take care and best wishes.



  • Teresa68Teresa68 Posts: 10

    Sorry, I mean 2018, I'm ahead of myself there!! Chemo brain started already!

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    Hi @Teresa68

    hope you are doing okay today. I read your post and thought I would send you some information on the possible cyber knife treatment that has been suggested as a possibility for you.

    good luck with your chemotherapy

    best wishes

    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • RobertARobertA Posts: 1,273 ✭✭✭✭✭
    edited May 2020


    Hi Teresa

    Lovely to hear from you but so sorry to hear that you are back on chemo again. I’m not surprised that you are feeling fed up, and of course, with the treatment you have been receiving, you have effectively been under Lockdown since 2018.

    You must be very proud of your daughter and your son. The work that your daughter is doing on the virus right now is so very important and its success may be the only way life can get back to normal again.

    I am pleased that you decided to get in touch again. I am sure that your husband and Casper are very supportive, but sometimes it is good to be able to chat with others who have some personal experience of coping with cancer and who can truly empathise.

    By the way, I would love to see a pic of your Triumph motorcycle. Even if you can’t ride it at the moment, it must be a pleasure just looking at it.

    Take care

    Rob x

  • Teresa68Teresa68 Posts: 10

    Thank you. My Triumph Bonneville has been tucked away in the garage for a while and is up for sale as I have only ridden it twice since I became ill. My husband has taken it out but he has two motorcycles of his own. I find that I don't have the energy now to do a lot of miles on it, so have sadly decided to part with it. I do have a scooter that I ride about on when I can, as it's much lighter - I can't give them up completely!

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