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Reoccurrence breast cancer

MrBumpsMumMrBumpsMum Posts: 12

Hi all, it's been a while since I posted on here, however I am 1week from a reoccurrence diagnosis and struggling a little, I was told last week that I have a grade 2 breast cancer recurrence, feel smacked in the face and extremely scared right now, I am just over a year since my lumpectomy and 6mths since I finished herceptin so in my head this shouldn't be happening as I did everything asked of me. So far I have had a ultrasound of my armpit and am pleased to say the the consultant that did this said there is nothing there that is worrying her or giving her a reason to want to take a sample, so I found that quite positive however I have a CT scan tomorrow to see if it has gone anywhere else and this is just niggling me, I'm petrified, I have 3 young children (14yrs, 3yrs and 18mths) I'm trying to be upbeat but am completely struggling as this scan tomorrow decides what happens next?

Comments

  • RobertARobertA Posts: 1,174 mod

    @MrBumpsMum

    Good evening Vicky

    I am so sorry to hear that you have had a recurrence after everything you have been through already.

    I do hope that your CT scan is good news and that you will let us know how you get on.

    Rob x

  • MrBumpsMumMrBumpsMum Posts: 12

    I had my follow up yesterday and the scan results were fine with exception of a 3mm nodule on my lower right lung it could be nothing or could be something! I will be having a rescan sometime in July when hopefully this virus situation is a little easier. On the plus side my surgeon has managed to get me in for surgery this Monday, as he wants it done before they potentially put a stop the surgery, still feeling scared but at least I'm not going to be hanging around waiting for an action plan and over thinking everything.

  • LouiseJLouiseJ Posts: 678 mod

    @MrBumpsMum

    Good morning Vicky,

    I am so sorry to hear you are facing this cancer diagnosis yet again, I can imagine how devastating this must be for you and how very scary it all is. My heart does go out to you, having a young family to look after as well must make everything more difficult for you.

    It is good that the CT scan had some positive news for you in part at least. I am very glad to hear you are booked in for surgery on Monday. It is great the surgeon had a slot available. I agree, to get this over and done with will allow you some breathing space and some recovery time while we get through the coronavirus crisis. I know it doesn't remove all your concerns and worries which will niggle at you, try and focus on the plus side still. Are you having a mastectomy this time?

    Please let us know how you get on after next week when you are able, we will be thinking of you. If you have any questions or concerns or just want to have a chat, please know we are here for you.

    Lou x

  • MrBumpsMumMrBumpsMum Posts: 12

    Hi Lou,

    Yes single mastectomy as it's my only option now because of the treatment I had last time, wanted immediate reconstruction but that's not an option with the current situation as it has more potential for complications and adding extra pressure to an already stretched NHS, so delayed reconstruction it is, not what I hoped for but understand why it's the way it is xx

  • LouiseJLouiseJ Posts: 678 mod

    @MrBumpsMum

    Hi Vicky,

    Yes, I understand that. I had a single mastectomy too, but not a reconstruction then. It was planned to discuss it 6 months after my treatment finished. By then I had changed my mind and decided not to go ahead with it afterall. I had a reduction on the other side to make things easier.

    Wishing you all the best for Monday,

    🤗

    Lou x

  • LizzyB73LizzyB73 Posts: 111 Oncology Specialist Nurse

    @MrBumpsMum

    Hi Vicky

    Wishing you all the very best for your operation next Monday. Please let us know how you are once you have had time to recover.

    Good luck


    Liz x

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • RobertARobertA Posts: 1,174 mod

    @MrBumpsMum

    Hi Vicky

    Thank you for the update.

    I would like to offer my best wishes for your operation on Monday. It will be good to get it out of the way and we will be here for you when it is over.

    All the best

    Rob x

  • MrBumpsMumMrBumpsMum Posts: 12

    Thank you all for your kind words, I will update as and when I can xx

  • MrBumpsMumMrBumpsMum Posts: 12

    Hi All,

    Update, so had the op a week ago today, I was being done as a day case but ended up having to stay in overnight, they didn't like my heart rate after surgery, too fast for no obvious reason, that and I was still really sleepy! As far as I know the op went well, they managed to find a node to test so that's better than I was thinking because of the previous surgery I thought they would have to remove all the nodes. I luckily only had one drain which was removed by the lovely district nurse yesterday morning, nice to be able to move freely and not worry about the little people tugging on it. I have an appointment on Wednesday for the dressing and then I think with the surgery team on Thursday. Not sure how I feel about it all at the moment, struggling with how I look currently, I have a wonderfully supportive partner, so I know it's me! Never had body confidence before and this has knocked me for 6! But at the same time I am also very aware that this was the only option!

  • RobertARobertA Posts: 1,174 mod

    @MrBumpsMum

    Good evening Vicky

    Lovely to hear from you. It sounds as if your surgery went well and I am delighted for you.

    I am not surprised that you are feeling as if you have been knocked for 6 and I am sure that other people who have been through similar surgery would feel the same. It is great to know that you have such a supportive partner and I know that you will work through it together.

    Rob x

  • LouiseJLouiseJ Posts: 678 mod

    @MrBumpsMum

    Hi Vicky,

    It is good to hear from you, I am so glad the surgery went well, and they were able to find nodes to test.

    Having the drain removed is a good sign of your recovery going forward, I hope your appointment on Wednesday and Thursday go well, and you get some feedback from the surgical team.

    It is a shock post-surgery, and it will feel very strange and weird, as well as painful no doubt. Keep taking one day at a time, try and do the exercises each day, even a little movement is better than none.

    I think the fact you are in lockdown as well as having had major surgery is a huge amount to deal with, I know having your family around you for support will be make a big difference.

    Take care, chat again soon,

    Lou 🤗

    xx

  • LizzyB73LizzyB73 Posts: 111 Oncology Specialist Nurse

    @MrBumpsMum

    Hi Vicky

    I am glad the surgery appeared to go well.

    Make sure your family all spoil you right now 😊

    Take good care

    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • MrBumpsMumMrBumpsMum Posts: 12

    Hi all,

    Just had my follow up appointment with the surgery team, they are pleased to report that they got all the cancer and the 1 node which they found and tested was clear. Will I need chemo again? Well that's in the hands of the oncologist as they will discuss the benefits and negatives of having it again! It was HER2+ again which is no surprise as it was last time, maybe herceptin didn't work for me, who knows! Feeling relieved but also know it's not quite out of the woods yet!

  • RobertARobertA Posts: 1,174 mod

    @MrBumpsMum

    Hi Vicky

    Thank you for the update. I am delighted that you have had confirmation that they got all of your cancer and also that the no 1 node was clear.

    It is lovely to have some good news at these difficult times.

    Stay safe

    Rob x

  • SunshinedaffSunshinedaff Posts: 1,285 ✭✭✭✭✭

    @MrBumpsMum

    Hi Vicky,

    I am so pleased for you that you have had positive results following your surgery. It is very good news! 🙂. Waiting for these results to come through is always an anxious time.

    Hopefully you will be able to have contact with your oncologist soon to discuss what happens next, if anything.

    How is your recovery from surgery going? I know you have wonderful support from your family to help you.

    I hope you and your family are staying well and clear from the virus. These are difficult times, dealing with cancer, even more so.

    Sending you very best wishes, please keep in touch.

    Lou 🤗🤗

  • MrBumpsMumMrBumpsMum Posts: 12

    Hi all,

    I will be having a telephone consultation with my original oncologist tomorrow (Wednesday) but as I've just received a call from the cardiology department for an echocardiogram, I'm going to assume that chemo is what is going to happen next. I know it's wrong to assume but given the fact that a echocardiogram has been requested is a good enough indication to me. I just can't get away from the feeling of being made to be ill again!

  • RobertARobertA Posts: 1,174 mod
    edited April 28

    @MrBumpsMum

    Hi Vicky

    I hope that your consultation goes well tomorrow. I am sure that whatever is decided will be what is best for you. Take good care and keep safe.

    Rob x

  • LizzyB73LizzyB73 Posts: 111 Oncology Specialist Nurse

    @MrBumpsMum

    Hi


    Just wanted to check in to see how you got on with your consultation today. Let me know if you need any support

    Liz 😍

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • MrBumpsMumMrBumpsMum Posts: 12

    Hi Liz,

    Thank you.

    I will be starting chemo in about 3 weeks, currently the treatment plan is a couple rounds of EC (2 to 3) then weekly Paclitaxel with herceptin, I've had EC before and herceptin but not the Paclitaxel, I'm a little worried about that one as for me it's the unknown, I belong on another forum (Mummy's star) and have posted there and the ladies tell me that it's not too bad. I have an echocardiogram tomorrow morning so depending on the results my treatment plan may change a little, not that I think it will as on my last echo in October all was fine.

  • MrBumpsMumMrBumpsMum Posts: 12

    Hi all, just thought I'd check in and let you know that I am starting chemo this coming Monday, I have an appointment on Friday for a picc line, that's going to make sleeping a tad difficult as the line will be in my left arm and my surgery was on my right side! It'll be interesting that's for sure 😊

    Stay safe xx

  • SunshinedaffSunshinedaff Posts: 1,285 ✭✭✭✭✭

    @MrBumpsMum

    Good morning Vicky,

    I am sorry that you are having to have chemo as well now. It is good they have been able to schedule it to start quickly though.

    The picc line will make it easier to administer the meds, I had one as my veins just weren't strong enough. They disappear as soon as the needle appears! 😄

    I had chemo before my operation, so didn't have your dilemma about which side to sleep on. Until you are more comfortable will you be able to sleep more upright? I did that for a long time after surgery as I couldn't lie down.

    I hope the picc line procedure goes smoothly for you, and I will be thinking of you on Monday when you go for chemo. We are all here for you, just take it one day at a time.

    Sending you huge, but gentle hugs! 🤗🤗

    Lou xx

  • MrBumpsMumMrBumpsMum Posts: 12

    @Sunshinedaff

    Hi Lou,

    Thank you for the hugs, I had a picc line last time and I would definitely recommend them to anyone starting treatment. It just makes the process easier I feel, not looking forward to the weekly trips to the hospital for the picc care, mind you in the current situation of shielding, it's nice for a change of scenery 😁

    Keep safe xx

    Vicky x

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