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Diagnosis

Lizzie1Lizzie1 Posts: 1
edited March 2020 in Diagnosis & Appointments

Hi my name is lizzie it’s my first time asking a question but when told we have cancer does everyone understand there diagnosis? I don’t think I do?? I feel stupid that I don’t no some answers to the questions xx

Comments

  • SusanW60SusanW60 Posts: 13

    Hi Lizzie

    So sorry that you've recently been diagnosed with cancer.It turns your world upside down in an instant and it is very hard yo take in everything that is said to you. Were you on your own when they told you? You will probably find that there is a dedicated organisation for your particular type of cancer or Macmillan are very good too. It is best if you can to stick to their websites for information and try not to Google too much. That's easier said than done but I scared myself witless at first,but later discovered that so much of the information out there is out of date or just plain wrong!

    I expect you will be in a whirlwind of appointments and tests in the early stages which is just exhausting physically and mentally. I found once a treatment plan was in place things began to settle down.

    It cant help I'm sure with all the Coronavirus stuff to deal with too on top of everything else. I wish you well and don't be afraid to contact your medical team to ask questions. I have found the care and sheer dedication of NHS staff to be truly amazing. Wishing you the best

    Sue

  • RobertARobertA Posts: 1,272 ✭✭✭✭✭

    @Lizzie1 @SusanW60

    Hi Lizzie, I agree with everything Sue has said and expressed so eloquently.

    No way should you feel stupid. I vividly recall that when I was first diagnosed with cancer, I was half expecting it but it still threw me. I think I stopped listening in a way as I was still trying to absorb what had just been said to me. My wife was with me at the time and though she tried to follow everything that was being said, we still left the meeting with lots more questions than answers.

    As Sue has said, once you have a treatment plan in place things will settle down.

    I am delighted you have found this Community. We may have different cancers, but we are here to support and encourage each other. You are very welcome and I hope you will keep in touch.

    Rob x

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    @Lizzie1

    Hi

    Please do get in touch with me @LizzyB73 if you need some more support with questions and I will try and help

    sending hugs

    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • LouiseJLouiseJ Posts: 771 ✭✭✭✭✭

    @Lizzie1

    Hi Lizzie,

    I just wanted to add my welcome to the community to you.

    I am so glad you found us, as Rob, Sue ans Liz have already said in their posts, being diagnosed with cancer changes your life in an instant and there is so much to take in and understand. But for most of us, a lot of what is said in those early days apart from the 'main event' goes in one ear and out of the other. The shock of 'that' sentence can leave us unable to sensibly form questions etc. But if you want to know more details that you don't feel you have at the moment, there is no shame or harm in asking for information. Stay away from Google though, google is not your friend at times like these, and often lots of unhelpful stuff is thrown at you!

    I hope that you get a plan of action soon, I know the coronavirus situation has caused a lot of changes in the way appointments and schedules are being handled. In the meantime, you can contact us here for a friendly chat over coffee or if you have any questions etc. You will find heaps of support and encouragement here, we all understand where you are at, and how you are feeling. You can speak freely here without feeling judged or 'stupid'.

    Please keep in touch with us,

    Take very good care of yourself,

    Lou x

  • Villiger1Villiger1 Posts: 3

    Hi Lizzy it is a huge shock, I couldn’t eat for 2 weeks and was in a very dark place until all my scans etc came back saying it was just in the breast. That made me feel positive, When your treatment plan is in place and you start it things will be a lot better. I had my first chemo last week, it wasn’t as bad as I thought, no sickness due to drugs they send you home with for the first few days, just a few tummy injections to increase my white blood cells. You will be fine. When diagnosed I went about ordering things I was told from other friends who have had it including a wig....wigs on line they are very good...toiletries etc. I am feeling ok bit not with it but hoping this will be better after a week. I thought I would be able to sew and knit but can't really concentrate. Hope this helps and of course with this Coronavirus it not helped by not being able to see family or go out, but we are lucky we are hear to fight the day.

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