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New to this group

NixsterNixster Posts: 28 ✭✭

Hello

grateful to find this group. I just had a lumpectomy and 3 lymph nodes removed this past week. I’m waiting for my tumor results to come back to see if I will require chemo. I will definitely need 5-7 weeks of radiation m-f and 5 year of a cancer pill

I was told the Gelo cooling mat would be helpful so I ordered it today.

I have been told I will experience burns, peeling and possibly blisters. If anyone that has has breast radiation has any recommendations on creams or lotions to help, I would gladly like to hear them.

Thanks in advance

Comments

  • SunshinedaffSunshinedaff Posts: 1,287 ✭✭✭✭✭

    @Nixster

    Good morning! Welcome to the community, I am glad you found us too. You will find a lot of support, encouragement and friendship here, everyone is very friendly.

    I am sorry to hear of your diagnosis though. I hope you are recovering well from the lumpectomy.

    The radiotherapy will give you some side effects, which will be explained to you in great detail at your planning meeting. Yes, you may get a 'sunburn' type of burn on your skin in the area exposed, it might blister, but applying a good moisturiser every day will help to minimise the blistering. The doctors/nurses will monitor your skin carefully too, if there is blistering occurring, they can give you some cream to help with this. One of the other possible side effects fatigue which can increase as your treatment goes on.

    With regards to the actual moisturiser to use, it does vary, and hospitals can vary in the information they advise. Here in the community, others have used Aveeno, I used a simple Clinique moisturiser every day. I had one area by my neck which blistered and I was given an antibacterial cream to apply. Some suggest one with aloe vera in, but check with the hospital first before you decide. Take their advice.

    I hope the results come back favourably and chemo is not required. Please keep in touch with how you are doing, if you have any other questions or would just like to chat, please feel free to contact me or anyone here.

    Chat soon,

    Lou x

  • NixsterNixster Posts: 28 ✭✭

    Sunshine,

    thank you for welcoming me and for the advice on creams.

    im still waiting on my tumor results.

    my incisions are healing well but I having a difficult time with where they removed my lymph nodes. (Under arm area) I have tried using sterile pads (taping them on). They always seem to come off. I have tried Ice for the “raw feeling” and have tried different shirts. (Loose, tight, no sleeves.) sports bras rub right where the incision is. Any suggestions on how to relieve or compress this raw feeling area?


    thanks in advance for anyone’s suggestions

    sincerely

    Nixster

  • RobertARobertA Posts: 1,177 mod
    edited March 20

    @Nixster

    Hi Nixster

    I have had radiation treatment (different area) and I was advised to use Cetraben which is SLS free. I liked it and I still use it now three years later though I must say I did not have any significant burns anyway.

    I do hope that your tumour results come out well and that you will not need chemotherapy.

    Our community is full of courageous, caring and funny people, new friends who don’t mind when you are having a bad day and who celebrate the good ones with you, You are most welcome and I hope you will keep in touch.

    Rob x

  • NixsterNixster Posts: 28 ✭✭

    Rob x

    Thank you for responding to my post and letting me know about the Cetraben

    With all that is going on, the hospital forgot to send for the results of my tumor. (The Oncho DX test) so it will be sometime in April before I know if I require chemo.

    it’s nice to have a place to talk to people who truly understand


    hugs

    Nixster

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    @Nixster

    Hi

    I have attached some information for you too


    Please let me know if I can assist further

    best wishes

    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • NixsterNixster Posts: 28 ✭✭

    LizzyB73

    Thank you so much for the information on radiation I truly appreciate it.

    It’s wonderful to find an online community that understands and cares so much


    hugs,

    Nikki

  • NixsterNixster Posts: 28 ✭✭

    Sunshinedaff

    LizzyB73

    RobertA

    I wanted to let you know I received my Oncho DX score and I do not require chemo

    I am grateful for that

    I was supossed to have my radiation simulation on april 2nd but due to the virus, it has been moved to May 27th and my radiation will probably start in June

    I hope you are doing well


    hugs,


    Nikki

  • SunshinedaffSunshinedaff Posts: 1,287 ✭✭✭✭✭

    @Nixster

    Hi Nikki,

    It is lovely to hear from you.

    That is good news you do not need to have chemotherapy as part of your treatment. I am sorry the radiotherapy is going to be delayed as a result of the ongoing coronavirus situation. I know that other patients have also had treatment plans interrupted which is concerning for them.

    How are you feeling in your underarm area following surgery? Has that improved more?

    I do hope you are able to stay clear of contracting the virus and have all the help and support you need.

    Please keep in touch, always here for a chat and a coffee or cup of tea! 😊

    Lou x

  • NixsterNixster Posts: 28 ✭✭

    @Sunshinedaff,

    Lou X

    Nice to hear from you too❤️

    How are you getting along?

    i am feeling much better thank you for asking I am feeling closer to normal now

    One of the things I did that helped me sleep was using a newborn pillow (the c shaped stuffed pillow). By putting the opening towards my underarm it allowed my arm to rest without anything touching my incision area.

    I happened to have one laying around so I gave it a shot and it worked great. I used it until I was fully healed.

    I know this is a scary time for everyone, especially cancer patients and those with respiratory illness I am okay with them delaying my radiation at this time because I would need to be at the hospital‘ Monday - Friday for weeks I don’t want to take the chance of contracting the virus

    I have been staying at home and my family, that lives with me, has been bringing my groceries I wipe packaging and cans down with bleach and paper towels before putting them away I scrub my fruits and vegetables before hand too

    I hope you are staying safe as well?

    have a great day!


    hugs, blessings and belly blows!


    Nikki

  • SunshinedaffSunshinedaff Posts: 1,287 ✭✭✭✭✭

    @Nixster

    Hi Nikki,

    I am doing much better thank you. I think I am finally turning a corner with 'whatever' I had for weeks on end! Fatigue makes it worse definitely, so I am resting much more than usual. Ironic really being in lockdown as it would see me doing all manner of things around the house😂. I am still learning that 'things can wait'😊.

    Good to hear you are feeling more like yourself. I am sorry I should have mentioned putting a pillow under your arm, of course!! I can't believe I didn't! Good you found that out!

    Glad to hear you have family helping out, yes, I also wiped down my groceries with antibac. We are friendly with our delivery drivers as we tend to get the same ones. We are still able to have a chat from a distance as he drops the bags off. I have one more order for delivery, after which I have managed to get click and collect so my husband will go down to get it.

    Thankfully we have a lovely garden we can get out in, I am very blessed with that.

    Have a good evening, chat soon,

    Lou 🤗🤗💐

  • RobertARobertA Posts: 1,177 mod

    @Nixster @Sunshinedaff

    Hi Nikki

    Thank you so much for the update. I am delighted to hear that you do not need chemo, that is great news. It isn’t ideal, having to delay the radiotherapy, but they would not have done that unless it was OK and it is better to keep away from the hospital if you can.

    Hi Lou

    Well, thank goodness you are feeling better at last. Yes, do take the chance to rest up and chill, for a while at least.

    I had to go to the doctor for a blood test today. I tried to put it off, but they were having none of it. In truth, it was like breaking into the surgery. There was a fully masked, gowned and gloved lady at the door, controlling everything, checking IDs, distances and squirting cleanser all over the place. The doctor was very chatty, said it was nice to speak to someone in person as most of her appointments are by telephone these days. I felt really safe and I was pleased that the staff all had the appropriate masks etc. for their own safety.

    Keep safe everyone.

    Rob x

  • NixsterNixster Posts: 28 ✭✭


    @ Sunshinedaff

    Hi Lou,

    Glad you are feeling better I am glad you are resting too

    if you are like me, I feel like everything has to be in order, but your health is more important Than projects or cleaning I always joke that I would make a bad dog, because I don’t sit well

    I am glad you have a garden to be in when you are feeling up to it Is it a vegetable or flower garden? Maybe you could include a photo when your up to it?

    Im grateful I have a flower garden to be in

    I am in Illinois (US) so the flowers are not blooming yet but I have been able to sit and weed in preparation for the beautiful flowers to come ❤️

    It is nice that you have delivery drivers that you can talk to from a distance I know with the isolation it’s nice just to see some other faces and be able to speak to others

    it is nice to talk with you


    Take good care of yourself


    🤗 Nikki

  • SunshinedaffSunshinedaff Posts: 1,287 ✭✭✭✭✭

    @Nixster

    Hi Nikki,

    I hope you are having a good day! I have just packed up my latest painting for the day, my eyes are getting tired and I don't want to rush it! It is the evening here now.

    Yes, I always have several projects on the go at once, hahaha 😂.

    Our garden is mainly flowers and shrubs, but I also grow strawberries and blackcurrants. This year I am planting tomatoes, cucumber and sweetcorn (which is a new one for me to try). With the lockdown we have I haven't started to sort out summer bedding, but I have some seeds to grow some. We are still getting a frost here sometimes, so I am not in too much of a hurry! I have a friend in Montana and she posted snow photos the other day!

    I will post some pics from last summer to give you an idea. I am glad you have a garden too to enjoy. I find it very peaceful, even when I am very stressed or something just pottering around in the garden really helps.

    Enjoy the rest of your day Nikki, lovely to chat with you too.

    Lou 🤗xx

  • LizzyB73LizzyB73 Posts: 112 Oncology Specialist Nurse

    Hi @Nixster Nikki

    Thats so good you do not need to have chemo following the oncotype testing.

    Wish you well for your continued recovery and good luck with radiotherapy.

    best wishes

    Liz 💕

    Liz Bradley
    Oncology Specialist Nurse | Oncology Service Manager @ Springfield Hospital
  • RobertARobertA Posts: 1,177 mod

    @Sunshinedaff

    Oh Lou

    Your garden is gorgeous. What a lovely space to have in these difficult times. I bet you have to work very hard to keep it so beautiful.

    Rob x

  • NixsterNixster Posts: 28 ✭✭


    @Sunshinedaff

    Greetings Lou,

    Your Gardens and flowers are beautiful! Thank you for posting the photos! I’m glad you have such a nice garden to work in

    The weather here is still questionable too Last two days it has been in 70-80s but I see that it will soon be in the 50s again

    I understand what you mean about not being quick to plant seeds

    I did plant some flower seeds that I harvested from last year hopefully the cold snap won’t hurt them

    Do you grow your strawberries in pots or in the ground? I’ve tried growing them in the past but we have so many rabbits in my town that they eat them before they have a chance to grow

    I have thought about doing them in hanging pots

    You paint too? That is awesome! It sounds like you are a woman of many talents

    take care and don’t forget to rest in between all your projects!


    hugs

    Nikki

  • NixsterNixster Posts: 28 ✭✭


    @LizzyB73

    Liz

    thank you so much for the well wishes❤️

    Nikki

  • SunshinedaffSunshinedaff Posts: 1,287 ✭✭✭✭✭

    @Nixster

    Hi Nikki,

    I hope you are having a good Easter weekend, even with the lockdown everywhere.

    We are having a very warm, sunny weekend, everywhere near to us is usually jammed with traffic trying to get down to the coast. Not this weekend. We can normally hear the sounds of the traffic, but it is very quiet.

    Today, I planted some sunflower seeds in pots, with my daughter, tomorrow we will do some more seeding. Keeping them in the greenhouse at night. I have my blackcurrants and strawberries in pots and raised beds. I have some in small pots that I was able to start off over winter from last years crop. They are all coming along well. I love that I can smell blackcurrants just from the leaves that are budding.

    Hanging pots would work for strawberries, that may help to keep them out of reach of the rabbits!

    I found some painting by number sets that are so well designed and made, I really love doing it, it is very relaxing. I finished my first one the other day, it was Van Gogh's Sunflowers. It turned out really well I think. I am now doing one with dolphins in sunset.

    Wishing you a very Happy Easter, chat soon,

    Lou xx

  • Sh1v4S4pph14eSh1v4S4pph14e Posts: 2

    Hi Nixster, I had a lumpectomy chem and radiotherapy finished treatment end of January. Had a tiny bit of peeling under arm where my bra rubbed the area You need to keep your skin well moisturised with radiotherapy with an unperfumed product, I used AVEENO daily moisturising body lotion its suitable for sensitive skin. you can get in the supermarkets as well as chemists. The redness and peeling for me happened towards the end of radiotherapy though I know it can be different for everyone. I didn't wear a bra until towards the end of treatment just a soft bralette top to avoid rubbing. Hope this helps

  • NixsterNixster Posts: 28 ✭✭


    Sh1v4S4pph14e

    Thank you for sharing your experience, and for letting me know what you experienced for radiation ❤️

    I will definitely stay well Moisturized during the process and get the Aveeno non fragrance

    I will probably do the same, and not wear a bra for a while to prevent rubbing

    Im Still wearing a soft sports bra to avoid the rubbing on the incision from the removal of my lymph nodes

    thank you for taking the time to respond

    Nikki

  • janwjanw Posts: 1

    Hi first time posting on the forum I had a lumpectomy and lymph nodes removal. I finished chemo in October and radiation in January used plenty of moisturizer Aveeno and had no problems with my skin but approx 4 weeks after treatment finished the skin under my breast and around it blistered quite badly went to the surgery and they gave me some cream called Flamazine an anti bacterial cream.It was marvellous within a week skin had started healing and shortly after didn't have any more problems. Keep safe and take care everyone.

  • LouiseJLouiseJ Posts: 680 mod
    edited April 19

    @janw

    Good morning to you, welcome to our community. 😀

    It is good to hear you have come through your treatment, I hope your recovery from everything is going well, I know it takes a while, and can feel like forever! Adjusting to life 'post-cancer' is difficult I found, So much had changed, and I found I had to change the way I did things due to continuing side-effects from treatment. It is definitely a 'one day at a time' process!

    You will find there are so many others here who have also been diagnosed with breast cancer, everyone is very friendly, supportive and love to chat. Even if the cancer is different, everyone understands the impact it has not just physically, but emotionally too.

    We have 'non-cancer' chats going on too, check out the Cancer Coffee break section, you are more than welcome to join in with any discussion or thread.

    I hope you are managing ok during this lockdown and are keeping safe,

    Hope to chat again soon,

    Lou x

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