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UPDATED! Easing lockdown & ending shielding | Coronavirus: Updates, useful resources and advice

Blanka_CBlanka_C Posts: 319 Community Admin

[Updated on 25th June, 2020}


Hello Everyone, 

The UK government has announced new plans for the 'extremely clinically vulnerable' - many of whom have not left their homes in three months.

In England, the shielding scheme will begin to wind down next month. From July 6, the two million people affected will be able to leave their homes to meet friends and family outside in groups of up to six and form a ‘support bubble’ with another household, in line with the rules for the wider population. Shielding will then be completely paused from August 1. It means people with serious underlying health conditions including respiratory diseases, some cancers and transplant patients will follow roughly the same rules as the rest of the public.

We've recently written a blog post that summarises the latest guidance on easing lockdown and ending shielding, as well as what that means if you are living with cancer.



 Fur further official guidance, please visit:



Stay safe and if you have any questions or concerns, please feel free to let us know and we'll do our best to assist you further.

Best,

Blanka & Team LBW

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Given the current Coronavirus (COVID-19) situation, we’ve decided to collect a couple of informative and credible resources, as well as open a discussion here on the Forum. 

Below you’ll see both general information (such as latest government updates, facts, etc.) and specific advice for cancer patients and those caring for a loved one. 

Of course the situation evolves rapidly and our aim is to keep sharing what’s new by continuously updating this thread. Please check back regularly (you will be able to see the date of update at the top of the page). 

We hope you’ll find this useful. Please do share any thoughts, experiences, concerns or questions below. 


WATCH OUR EXPERT WEBINAR ON CANCER & THE CORONAVIRUS

In March, we held an expert webinar with @LizzyB73, our oncology nurse and @KarinSieger, our emotional wellbeing advisor on cancer and the coronavirus.

We answered your questions live and covered topics like self-isolation, being at risk, treatment plans and mental health. You can now watch the full video here:


If you are worried, have further questions or would like to talk to someone qualified, you can ask Liz @LizzyB73, our lovely Oncology Specialist Nurse here.

If you are worried, experience feelings of anxiety, stress or fear, you can talk to @KarinSieger, our friendly Emotional Wellbeing Advisor here.


TRACK YOUR SYMPTOMS WITH THE CAREOLOGY MOBILE APP

Careology is empowering people living with cancer to feel more in control and providing their friends and family with real-time information. When using the app, you will be able to:

  • track how you're feeling physically and emotionally 
  • receive personalised medication reminders
  • connect and share this information with their family, friends and carers
  • receive up-to-date content from the NHS with relevant Coronavirus advice


GENERAL ADVICE & INFORMATION

About the Coronavirus

Prevention

Latest updates


CANCER & CORONAVIRUS

Some people with cancer fall into the category of 'extremely vulnerable'. This includes:

  • people with cancer who are undergoing active chemotherapy or radical radiotherapy for lung cancer
  • people with cancers of the blood or bone marrow such as leukaemia, lymphoma or myeloma who are at any stage of treatment
  • people having immunotherapy or other continuing antibody treatments for cancer
  • people having other targeted cancer treatments which can affect the immune system, such as protein kinase inhibitors or PARP inhibitors
  • people who have had bone marrow or stem cell transplants in the last 6 months, or who are still taking immunosuppression drugs.


The NHS in England is directly contacting people with these conditions to give further advice. According to the latest UK Government update, 'If you think you fall into one of the categories of extremely vulnerable people listed above and you have not received a letter by Sunday 29 March 2020 or been contacted by your GP, you should discuss your concerns with your GP or hospital clinician. You are strongly advised to stay at home at all times and avoid any face-to-face contact for a period of at least 12 weeks from the day you receive your letter.

This includes:

  1. Strictly avoid contact with someone who is displaying symptoms of coronavirus. These symptoms include high temperature and/or new and continuous cough.
  2. Do not leave your house.
  3. Do not attend any gatherings. This includes gatherings of friends and families in private spaces for example family homes, weddings and religious services.
  4. Do not go out for shopping, leisure or travel and, when arranging food or medication deliveries, these should be left at the door to minimise contact.
  5. Keep in touch using remote technology such as phone, internet, and social media.


Information & Advice


Comments

  • Blanka_CBlanka_C Posts: 319 Community Admin

    This is a set of Frequently Asked Questions, put together by One Cancer Voice group of charities (published on 11th March 2020):



    Questions include:

    • Do I need to do anything differently as someone who is being treated?
    • What will happen to my cancer treatment?
    • Should I go to work / not see friends / not see friends who’ve travelled from affected areas?
    • What if I have travel planned or a holiday booked to one of the affected areas – am I more at risk if I do travel?
    • Does having had cancer treatment in the past increase my risk if I get the virus?
    • I am a carer for someone with cancer. Should I do anything differently?
  • KarinSiegerKarinSieger Posts: 98 Emotional Wellbeing Advisor
    Karin Sieger
    Psychotherapist | Cancer Counsellor  | Reg. MBACP (Accred)

  • SunshinedaffSunshinedaff Posts: 1,253 ✭✭✭✭✭

    Thanks for posting this Blanka, I know there has been some concern about this and the increased risk to cancer patients.

    This is very useful,

    Lou x

  • RobertARobertA Posts: 1,103 ✭✭✭✭✭
    edited March 12

    @Blanka_C

    Hi Blanka

    Many thanks for posting this comprehensive information. It is also very reassuring to know that Karin @KarinSieger and @LizzyB73 are available to provide their support and expertise.

    We have just two confirmed cases in our little Island of Jersey, but the supermarket shelves have already been stripped of hand sanitisers, loo rolls and pasta. Will just have to eat out. 😉

    I thought that I wasn’t too worried about it, but this morning, I bumped into a friend who has recently got back from skiing in the Alps. When he told me that, I started inching away without trying to be too obvious. Not sure why? Haha, maybe it’s because I am an elderly male with an underlying condition. 🤭

    Anyway, with all of the information we have now, we can take sensible steps to protect ourselves. Keep safe 🆗

    Rob x

  • SunshinedaffSunshinedaff Posts: 1,253 ✭✭✭✭✭

    @Annamariacoulson

    Hi Annamaria,

    I tagged you onto this page as you might find some of the information here helpful, I would think information will be updated on the relevant pages as and when new information becomes available.

    Lou x

  • KarinSiegerKarinSieger Posts: 98 Emotional Wellbeing Advisor

    @Blanka_C @Sunshinedaff @RobertA

    Dear all,

    I wanted to share with you the news that on Sunday 22 March 2020 at 1500 (UK time) I shall be giving an online talk to help prepare for and cope with the emotional impact of the coronavirus pandemic - eg anxiety, isolation, anger, stress, depression etc.

    You can find out more and book you space via my website here:

    Please feel free to share here and elsewhere on other online platforms.

    Warmest.

    Karin

    Karin Sieger
    Psychotherapist | Cancer Counsellor  | Reg. MBACP (Accred)

  • RobertARobertA Posts: 1,103 ✭✭✭✭✭
    edited March 15

    @KarinSieger @Blanka_C @Sunshinedaff

    Hi Karin

    That is really good news. Many thanks.

    So far, there have only been two confirmed cases in our little Island but at 74 and still on hormone treatments I am in the group who have been advised to self isolate though I am hoping to still enjoy walks along the quiet lanes and beaches.

    I am due to join a little group for dinner with friends who are visiting from Kent. I guess I shouldn’t go.

    I am looking forward to the online talk next Sunday.

    Rob x

  • LouiseJLouiseJ Posts: 593 mod

    @Greyson

    Hi Kay,

    You may find the information helpful as well as the information Liz has.

    Lou x


  • Blanka_CBlanka_C Posts: 319 Community Admin
    edited March 23

    Hi Everyone,

    I came across the following chart online and thought it's very useful.


    It's from the government's Guide on social distancing for everyone in the UK.

  • Blanka_CBlanka_C Posts: 319 Community Admin

    We've put together the following summary of the latest government update on staying home:


    If you have any question or concerns, our friendly Experts are here to help! x

  • LouiseJLouiseJ Posts: 593 mod

    @Sharyn

    Hi Sharyn,

    This is the page where we are putting information regarding COVID19, the information is updated regularly.

    Take care,

    Lou x

  • LouiseJLouiseJ Posts: 593 mod

    @george12

    Hi George,

    This may be useful information for you. A lot of these pages are often updated with the most recent govt guidelines regarding COVID19.

    Take care,

    Lou

  • Blanka_CBlanka_C Posts: 319 Community Admin

    Hi All,


    We're organising a FREE Expert Webinar (LIVE) with Oncology Specialist Nurse @LizzyB73 and Emotional Wellbeing Advisor @KarinSieger on cancer and the coronavirus.

    You'll have the opportunity to listen in, ask and get answers to your questions live (don't worry, you will not be required to use your camera or mic, you will be able to ask questions by simply using the chat function).👋

    When: 6pm - 7pm BST, Monday 30th March

    Topics covered include: staying safe, self-isolation, mental health

    How to join: No need to register, simply click on the following link at 6pm on the day: https://zoom.us/j/499732439

    We'll record the webinar and upload it on our site, so you'll be able to re-watch it anytime.❤️



  • LouiseJLouiseJ Posts: 593 mod

    @Janet827

    Hi Janet,

    This is the page where you may find some helpful information.

    At the top of the page Blanka has put the latest information available.

    Lou x

  • DaisyDaisy Posts: 1

    Hi just catching up with the advice you have posted, I think it is important that you clearly state that the advice shown is not for the UK but is only for England. The other 3 nations are at different stages in suppressing this virus. I realise it is difficult to put down what is happening in all 4 countries but even if you clearly identify the country you refer to, this will be helpful.

  • JerseyBobJerseyBob Posts: 62 mod

    @Daisy

    Hi Daisy

    Lovely to hear from you. I think that the original post by Community Admin does specifically identify the shielding scheme in England and also refers to the NHS in England.

    I live in Jersey and our rules are different too but I still find the advice useful and helpful. We also have members who live in other countries and it is interesting to see how each one has approached the issue.

    Rob x

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