Thanks Rob for thinking about me. I had another strange incident recently where family ignored the fact that I had cancer, but now I can laugh it off since learning from this site that it does happen, but my husband was very annoyed. Because my husband’s brother and wife were in the area they popped in for breakfast! Now they have been very good at contacting me on the internet as they live a distance away and I haven’t seen them since my diagnoses. They also seem to take a note of my Oncology appointments and message me to find out how I get on. They are both from medical backgrounds but still they spoke about everything under the sun but didn’t ask me how I was doing.My husband went around for days saying how can anyone do that. Sorry about the rant but it is strange don’t you think?
How are you feeling? My loss of hair seems to have slowed down which I’m glad about. I have a neighbour who says just what your friend said to you.......’no, how are you really?’ So very few people seem to understand that most people with cancer put on a brave face.
Must go and get ready for another hospital appointment. ENT this time...............now this is another story!!
Thanks again for thinking about me and writing back.
It is lovely to hear from you.
I think unless you are physically being sick in a bucket, looking like Gollum (from Lord of the Rings), looking like you are gasping for your last breath, people so quickly and easily forget how serious cancer and the treatment that goes with it is!
I am sorry to hear about your latest 'incident' with relatives, it is good you can laugh about it now, but I can understand how you and your husband must have felt at the time. I don't know whether it is because people are afraid of talking in depth for risk of upsetting those with cancer, or if they are so wrapped up in their own lives and 'stuff' , they become oblivious of others' situations. We are currently living with illness and some friends just don't get it. 'Are you better now?', as if there is a quick fix. I understand it is very frustrating.
Just to add to Rob and Karin's post, you are not doing anything wrong at all!
I am my family were very particular about who we surrounded ourselves with during cancer, I certainly didn't need to hear about someone's 'old Aunt Sally twice removed' who had cancer and 'oh bless her, she died' etc, etc, or someone's friend. Hahaha! It is incredulous that people think that is an OK thing to say to someone! 😂
How are you managing with the depression rearing itself again? Even though you may have had it for a while it is also not unusual to become depressed and low during cancer and treatment. I hope you are able to talk with someone about it. If your current medication is not helping, please speak with your Dr. about it.
How is your hair doing? Is it painful for you? It is good the loss is slowing down. Hair loss is really hard, as it is such a visual confirmation of having cancer.
I hope your ENT appointment goes ok today too.
Hopefully you also have some of this beautiful sunshine too where you are, feeling the warmth of the sun makes a huge difference to me.
Thankyou Kaz, I realise I’ve still got a long road to walk but I feel up for the challenge. I believe I can’t feel any worse than I do so let’s give HRT a go and I’m hoping I won’t look back! I’m starting my HRT on Monday so here’s to the future! And it looking brighter rather than bleak
think I will try one of the pillows .it helps to know other women experience the same issues I do find being at work the hardest
I’ve done a handful of Brazil nuts and walnuts before bed - like you, I read that protein helps with sleep. I’ve also tried bananas for the potassium. Magnesium, warm milk, lavender, valerian, and so many other things. All sorts over the years! Insomnia was the symptom I found the hardest to cope with, and it was an issue for a very long time.
Nothing really worked for me except magnesium for a short time.
About a year ago I started to use a mindfulness app. I use Clarity, but there are lots of others on the market.
This is the only thing that works consistently for me.
I think the trick is finding what works for you, and sticking with it. 😊
Yea i have had vagina scan a few months ago as i had discharge all was ok but since taking vagifem i seem to have this.i am going back to docs on monday see what she says
I have the book already
Thanks for asking after us 😀
I had my first EC treatment last Wednesday so now trying to manage the strange side effects!
Cant really complain as I am not ill - I am certainly not right. Tired and a bit disoriented with spells of nausea. Hopefully things will get better but for now I will accept it.
Apart from first 48 hours when it wasn’t nice I was more or less fine and so expected I would be ok for the rest of first cycle anyway. But now days 7 and 8 I feel worse than before. Maybe it’s a result of steroids being finished??
No sign of hair loss yet but I have a wig appointment next week.
Thanks again and hope you are well and are enjoying life.
@louisej @RobertA @Sunshinedaff
Hi everyone sorry for not posting but had a really rough time after my first chemo.
I was literally in bed for almost a week. Felt so sick and couldn't eat or drink anything. In fact if there had been a button to end it all I would have pressed it.
Luckily it did pass and the past few days I have started to feel better.
Have been in London again this week for treatment.
Explained to the medical team how I'd been so they have given me different anti sickness pills and also reduced the chemo dosage.
I've also had a PICC line inserted.
Feeling good today but that's the steroids but hopefully things will improve this time.
Also given me a date for my surgery - 9th January and that will be dependent on how well the chemo works.
Two down, 4 to go and feeling positive I can do this - well at least I am today ha ha.
it's bad enough at home but at least can dress lightly stick head in freezer. The nights are awful even with huge fan on. My biggest problem is bring a nurse 12 hour shifts in a uniform .it is so stressful and tiring when just suddenly feel hot when trying to do tasks .
Sorry I have not posted for some time.
I had my prostate removed in April and have been recovering well. I am now awaiting a check up but I feal good in my self.
As for my journey I had a robotic prostectomy followed by 2 weeks with a Catheter fitted, that was not pleasant, things have been healing since my toilet control has all but returned with only the occasional issue usely when standing. The other male issue is improving with the aid of tablets.
This has been a difficult journey for me as before been diagnosed I only thought I was suffering with a bad back but unfortunately this was nothing to do with my cancer and I am now dealing with that. But I will say any men out there get your PSA checked as I had no other symptoms and was discouraged by my GP to have the test as there was no course for concern. I only had the test based on my friend pushing me to get tested as he had got prostat issues, which was not found in time.
I am now awaiting my second check up which my PSA will be checked again my post operation results where 0.008 fingers crossed that stays there.
I will post again with any news