@RobertA @Jojodot @Sunshinedaff
Hope you are all well and enjoying this lovely sunny day.
Have survived 3 long days in London.
Tuesday was bone scan. Wednesday was a killer - 6 hours of infusion of trastuzumab and pertuzumab and then we couldn't leave clinic for a further 2 hours in case I had a reaction.
Thursday was infusion of docetaxel and carboplatin. Had the cold cap - boy was it cold, like having my head in a bucket of ice.
Got home at 10pm with a suitcase of tablets and so nice to sleep in my own bed.
Feeling very positive and off to see my lovely horse now as missed him so much.
Lorna I do hope that everything is going okay and you are staying positive. Been thinking about you.
Catch up with you all very soon.
Hugs to everyone
Tried to attach pictures but doesn't seem to work sorry
@RobertA , @Anneb
Good morning friends,
Rob, I am so glad you and your friend are going to put the world to rights, someone has to! Don't forget to let Boris know of your solutions! Lol!😂.
The only thing to be mindful of is not to let your discussions raise your blood pressure! Remain calm! 😀
HAHA, Mary is right of course! Out of the two I would much rather be weeding than hoovering, and don't mention dusting...I won't tolerate that language!!😂
You may have summised..I am going mad with the pain! Hysterical laughing now!😂
Margy, your weekend has started already, enjoy your evening! Is it still snowing? I cannot imagine that in August!
Totally agree. No need to take a position of worry when you don't need to. I don't think I could actually do any job that involves stress or pressure these days anyway. Unfortunately, Mary does not think hoovering or weeding are stressful. ☹️
Hope those meds kick in soon.
Wow, Friday already tomorrow. I meet a friend for lunch at our favourite pub at 12.30pm and we stay there for afternoon tea too. We will resolve the Brexit backstop issue, sort out the NHS, and fix the housing shortages. After that, we will get on to the cricket and football.
Have a great weekend lovely friends.
Haha, much better idea, washing cars, cleaning the office!! I'm sure Pete will be sooooo glad you came up with that idea!! Hahahaha 😂😂.
Yes, tooth is a joy! Mmm, picture this...a hot water bottle strapped to my head! Lol! Meds have not kicked in yet, it's pretty bad. Where did I put the string and pliers????? I will have to resort to that soon if it doesn't improve... hahahaha 😂😂😂😂.
You are always allowed to rant here Margy!
Hope you have had a good day, have a good evening.
Scorchio ☀️ here again, hot weekend coming up!
How are you both going? How is your mouth Lou. Still sore i bet.
Yes i think stonkered does mean drunk but apparently in aust and NZ it is exhausted. Weird isnt it. Drunk to us is plastered...lol...
No i am not going for manager rob, those days are over. After cancer i do not ever want to have a position of worry anymore. I will leave that to the young ones.. let their nerves be shot from worry 🤣🤣🤣 just not into high powered positions now.
We won't find out about Beau's job untill friday or monday i think, so will keep you posted
Yes lou , it is all little stuff to be packed. Really annoying...lol...but has to be done. Not sure about washing up🤣🤣🤣 but maybe clean their offices , oh or their company cars 🤣🤣🤣good idea lou.
I will get pete onto it 😂😂😂😂😂
Tennis...now that i do not watch much of. Especially if Kyios (aussie) is playing. Now there is the best example of a spoilt, ignorant, bad tempered brat with no sportsmanship what so ever.
Feel better after that rant 😀😀😀
Our new little girl Ash barty is a sweety though. Hopefully will go a long way. Just wonderful personality and hard worker💖💖
Well better go and organise Pete's new job washing cars for the bank 😀😀😀
Hope you are both feeling well
Love Margy 💖💖💖💖
@Anneb , @RobertA @Lesley
You have got so much going on! Not surprised you are 'stonkered'( love that word! 😄).
Packing up a house is never a pleasure, no matter how excited you might be about moving! Lol!
It is all the little fiddly bits that hang around because they are required until the last minute.. haha! 😂
So I don't like football ( sorry Rob, Lesley!) and I haven't been watching the cricket either! The last sport I watched was Wimbledon!
How did Beau get on in the interview?
Perhaps you could offer to do the washing up at the bank to help pay them back?? 😂😂, Sorry if this is too obscure a joke! My sense of humour!
Managed to get some antibiotics for my tooth. Definitely an abcess, so booked in for root canal in September! I am not good at dentist, I think I am his worst patient. He is brilliant though, I told him he's not allowed to retire!! Haha!
Sorry it was delayed, but it was a good idea to stick around! Back again tomorrow?
Yes, the forecast is good, enjoy the time with your family, we were down at the beach on Sunday afternoon. A quiet one for us I think, it would be nice to just sit in the garden for a bit to be honest! Haha!
Have a good evening,
thank you for your suggestion, I certainly will ask my Dr about a blood test.
Good start today.... all the computers had crashed at the hospital causing a 2hr delay, I was offered the choice of waiting around or coming in on Bank Holiday Monday for today’s session, needless to say I stayed and had my 1st session done.
Fourteen more to go haha.
Weather is going to be really hot at the weekend, I’ve got my son, daughter in law and 2 small granddaughters coming Friday to Sunday so I’m looking forward to that.
We will all go to our beach hut, have fun on the beach.
I hope you are doing ok, enjoy your weekend,
love Barbara xx
Thanks for sharing how you feel about others' response (or lack of) to how you experience your cancer treatment. You wonder whether it's all down to you, that people don't seem to show empathy, because you tried 'to be positive'.
May I suggest that you don't blame yourself. I find disappointment is part of the cancer experience. How we handle what we go through and how we communicate it to others is an ongoing process. Nothing is set in stone. It all depends on how we feel, our circumstances and the others.
I don't know why people respond the way they do. There may be a whole range of reasons incl:
They may be afraid to feel sorry or show empathy for fear of an outpouring of worries from the person with cancer, which both parties may not be able to cope with. That way some try to protect the person with cancer and themselves.
People cannot accept the reality and are in denial.
People may think they help by not making cancer an issue.
Being positive about having cancer - I often wonder what we really mean by it: denial, avoiding self-indulgence, self-pity, protecting others or ourselves from the truth ...? It's hard to be positive when we are worried, angry, frustrated, in pain, sad etc.
I would suggest not to pretend, but to think carefully about who we share the truth with. Because some people can't handle it and that can make things worse for us. In that way, having cancer can become a lonely experience.
It is also important not to shy away from the realty and almost educate people of what it's like for us, especially if we need their help.
I never forget telling some friends how disappointed I was with their (lack of) response after my first diagnosis. What I got back was utter silence from one and another telling me that "I sounded angry". I had to make a choice then, and decide who I needed in my life going forward. I am not saying you do the same. But want to let you know, you are by no means alone in feeling the way you do. No doubt, others can identify with what you are describing.
You may find the following of use: An article I wrote about "Talking about my cancer diagnosis - is it ok with you?" and from my podcast "Cancer And You" the episode "How should I talk about my cancer".
I hope my thoughts are of some assistance.
With best wishes.
Good afternoon Catherine and Lorna
I have been reading your posts and I am thinking of you both.
I hope you have a peaceful night Catherine. It is good that you are already in London and that you are in safe hands.
Hi Lorna. Well, you have not lost your sense of humour. Bodyguard receptionist 🤣🤣🤣
You are entitled to have a bad day and I am pleased that you have a meeting with the nurse tomorrow. I am sure it will be reassuring to have some clarity.
By the way, you can contact each other privately on this site. To the right of your profile at the top of the page, you have the notifications button which looks like a globe, if you tap the next one along from that it will enable you to message each other.