@NanaBubbles @shortfriend @RobertA
Good morning everyone.
I thought it was about time to officially open our Book Club!
The first book then is going to be You Were Gone by Tim Weaver.
We can keep in touch with how we find it, try not to put any spoilers in, Incase some are at different parts. Remember it's just for fun! But as many of us are having to be indoors currently, this is something else to pass the time.
I hope you are all staying well and safe.
If there are any others who would like to join in, please do, everyone welcome.
Just wanted to add my welcome with Blanka's to you.
I hope you are finding your first few days of chemo bearable so far.
As Blanka mentioned, you will find loads of support here, even if the cancer is different( mine was breast cancer), we all understand what it is like to live with cancer and the impact it has on our lives and families.
Feel free to come and chat any time, there is usually someone around all the time. Seeing as we have members from around the world, that is not surprising! 😄
Thanks for getting in touch.
Although usually herceptin is very well tolerated in terms of immunity, it can alter your immune system and the way it works so I would suggest that you need to err on the side of caution. Flu like symptoms., which can be the side effect of herceptin, maybe also masking possible symptoms of coronavirus. I suggest that self isolation as far as possible would be the ideal scenario at the moment.
In terms of pain relief. As long as you are not sensitive to codeine, then co codamol would be a good option request.
I wish you all the best for your forthcoming operation and subsequent recovery
Thank you so much for your quick response, it has definitely put my mind at rest.
sorry the end of your message was cut off but I got the jist about your concerns as to whether you are at higher risk of getting coronavirus
As you completed treatment 1 year ago and are now on hormone therapy and zometa only, your immunity would have returned to a normal level.
However, if you are concerned it would be a good idea to check this out with your healthcare team.
Hi Lizzie, I agree with everything Sue has said and expressed so eloquently.
No way should you feel stupid. I vividly recall that when I was first diagnosed with cancer, I was half expecting it but it still threw me. I think I stopped listening in a way as I was still trying to absorb what had just been said to me. My wife was with me at the time and though she tried to follow everything that was being said, we still left the meeting with lots more questions than answers.
As Sue has said, once you have a treatment plan in place things will settle down.
I am delighted you have found this Community. We may have different cancers, but we are here to support and encourage each other. You are very welcome and I hope you will keep in touch.
Good morning! Welcome to the community, I am glad you found us too. You will find a lot of support, encouragement and friendship here, everyone is very friendly.
I am sorry to hear of your diagnosis though. I hope you are recovering well from the lumpectomy.
The radiotherapy will give you some side effects, which will be explained to you in great detail at your planning meeting. Yes, you may get a 'sunburn' type of burn on your skin in the area exposed, it might blister, but applying a good moisturiser every day will help to minimise the blistering. The doctors/nurses will monitor your skin carefully too, if there is blistering occurring, they can give you some cream to help with this. One of the other possible side effects fatigue which can increase as your treatment goes on.
With regards to the actual moisturiser to use, it does vary, and hospitals can vary in the information they advise. Here in the community, others have used Aveeno, I used a simple Clinique moisturiser every day. I had one area by my neck which blistered and I was given an antibacterial cream to apply. Some suggest one with aloe vera in, but check with the hospital first before you decide. Take their advice.
I hope the results come back favourably and chemo is not required. Please keep in touch with how you are doing, if you have any other questions or would just like to chat, please feel free to contact me or anyone here.
Hi @Lokis_nana and @MonicaM,
I know what you're going through. I don't think I was ever this anxious before. I keep reading the news and I say to myself, when this will all end?
A friend of my just told me this morning that she completely stopped following the news as she was getting even more stressed. Not sure if this is the right approach, but she says she's doing better now mentally, so good for her. I'm the complete opposite, I need to know about developments, etc otherwise I just can't get any rest.
I'm working from home now and try to think of it as a precious opportunity to spend more time with my fiance, my dog (who's following me everywhere after he realised that mommy's home all day, haha) and to pick up a skill / learn something new I never had time for. So I started two things: mindfulness and digital illustrations.
I do breathing exercises and use the app called Headspace which is helping a lot. Then, when I start to feel anxious (which for me usually starts with a heavy feeling in my chest and throat), I simply do 15 squats and 5 jumping jacks. This makes me feel so much better. I basically do jumping jacks everywhere - yesterday I started in the kitchen, imagine the face of my flatmate, haha!!😁
Stay safe both.
Although usually herceptin is very well tolerated in terms of immunity, it can alter your immune system and the way it works so I would suggest that you need to err on the side of caution.
Work wise, as long as you are not exposed to very close proximity to others in a crowded place and can exercise social distancing effectively then I would suggest that self isolating may not be totally necessary.
It would be better to be upfront with your employers who are duty bound to be mindful of anyone with lowered resistance to possible infections.
I hope this helps
Hi @purple2020, I hope you don't mind me tagging you in this discussion, I've seen you've asked about staying safe. Liz, our lovely Oncology Nurse might be able to advise you further. You can just simply copy-paste your question here and she'll get back to you as soon as possible. ❤️